2 years ago I was full of emotions. I was anxious about the surgeries, and nervous that FSGS would return, but also hopeful for a successful transplant. I was excited to be able to watch Eliana grow taller, stronger, and more confident. As silly as it seems, I also daydreamed of the ways we would be able to celebrate our Kidneyversary. I have seen others’ posts celebrating Kidneyversarys, where the recipient and donor are thankful for the new life the kidney provided. It all looked so joyous and fun!
Today marks our 2-year Kidneyversary. For Eliana, all thoughts of transplant are negative, so she has no interest in celebrating today. Eventually, with age perhaps, she may recognize it as a gift and understand the meaning it had for me. I cannot fault her for having no interest in celebrating the day. For me, so far today, I went to a Krav Maga (self-defense) class. I am a total newbie but was happy when I was told I had a strong hit. Truth be told, I imagine “FSGS” written all over the punching bag so the force behind the hit is meaningful.
Even though the outcome of the transplant was not ideal and may not seem worthy of celebrating annually, there is still plenty to celebrate each and every day! Eliana is currently doing well. Her labs have been good and stable. She has enjoyed 2 different cooking camps this summer. She loves cooking! She is starting 5th grade in 2 weeks. She has had a good summer so far. Also, she connected with a teen transplant patient whom she adores. It is great that she has someone to relate to and can serve as a reminder that dialysis is not forever – transplants can be successful.
Today, I want to focus on gratitude for all that we have. Thank you to all that have continued to pray for Eliana and our entire family. The funds that have been donated to COTA for Eliana to assist with ngoing transplant-related expenses have been such a blessing. We cannot thank you all enough! THANK YOU!!!!