{"id":73,"date":"2025-04-22T20:19:15","date_gmt":"2025-04-22T20:19:15","guid":{"rendered":"https:\/\/cota.org\/cotaforeliana\/?p=73"},"modified":"2025-09-21T09:43:07","modified_gmt":"2025-09-21T09:43:07","slug":"holding-steady-and-looking-ahead","status":"publish","type":"post","link":"https:\/\/cota.org\/cotaforeliana\/2025\/04\/22\/holding-steady-and-looking-ahead\/","title":{"rendered":"Holding Steady and Looking Ahead"},"content":{"rendered":"\n

It\u2019s been a while \u2014 and thankfully, it\u2019s because life has been steady.<\/strong>
I always feel a little guilty when there\u2019s a long gap between updates, but in our world, quiet often means stable \u2014 and for that, we are truly grateful. Eliana has had just one overnight inpatient visit in all of 2024<\/strong>, and we\u2019ve been able to be home together as a family. That sense of normalcy has been a blessing, and we\u2019re holding onto hope that the rest of 2025 brings more of the same.<\/p>\n\n\n\n

While there\u2019s no big medical news to report, I wanted to share a glimpse into how Eliana is doing and what\u2019s ahead.<\/p>\n\n\n\n

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Where We Are in the Journey<\/h2>\n\n\n\n

We\u2019re still hoping and praying for new and improved treatments for FSGS<\/strong>. That hope is part of the reason we\u2019ve been waiting on the next transplant \u2014 always believing a breakthrough might be around the corner.<\/p>\n\n\n\n

But even with that hope, we also know this: dialysis is not forever<\/strong>. It\u2019s a bridge, not a destination.<\/p>\n\n\n\n

We\u2019re incredibly thankful that Eliana has responded well to peritoneal dialysis<\/strong>, which has given her a level of stability and freedom that not every dialysis patient is fortunate to have. But we also know the risks \u2014 we pray we don\u2019t wear out her peritoneum and have to switch to hemodialysis. Our goal is clear: a successful kidney transplant before that becomes necessary<\/strong>.<\/p>\n\n\n\n

There are so many factors to consider before her next transplant, and just thinking about it can be overwhelming. The thought of going through the process again \u2014 the coordination, the uncertainty, the physical and emotional toll \u2014 it\u2019s a lot. It can be hard to even let myself go there. But I know that time is approaching. Soon, I\u2019ll have to shift into that mindset again and push forward, one step at a time. <\/p>\n\n\n\n

That said, her nephrology team is expected to begin reviewing her transplant case soon, and that’s a possibility we could be looking at a transplant sometime in the summer of 2026.<\/p>\n\n\n\n

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A Busy Summer Ahead<\/h2>\n\n\n\n

On the lighter side \u2014 Eliana has a fun, full summer planned<\/strong>! She\u2019s attending several camps, including:<\/p>\n\n\n\n