{"id":82,"date":"2025-09-25T17:56:36","date_gmt":"2025-09-25T17:56:36","guid":{"rendered":"https:\/\/cota.org\/cotaforeliana\/?p=82"},"modified":"2025-09-25T18:20:32","modified_gmt":"2025-09-25T18:20:32","slug":"gratitude-challenges-and-whats-ahead","status":"publish","type":"post","link":"https:\/\/cota.org\/cotaforeliana\/2025\/09\/25\/gratitude-challenges-and-whats-ahead\/","title":{"rendered":"Gratitude, Challenges, and What\u2019s Ahead"},"content":{"rendered":"\n

Between camps, school, and hospital days, life has been full. I wanted to give an update on how Eliana has been doing \u2014 the fun, the hard, and the hopeful.<\/p>\n\n\n\n

This summer held so many good moments. Eliana went to camps for softball, theater, and cooking, had an overnight camp through CHOA, and treasured time with her cousin. She also kicked off 7th grade \u2014 which feels impossible to believe some days. Time is flying, and I\u2019m grateful for every chance she gets to just be a kid.<\/p>\n\n\n\n

We also had a special visit from her grandparents, Deedle and Jet, during fall break, which filled our home with love and laughter. Those visits mean so much.<\/p>\n\n\n\n

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But alongside the bright spots, the medical side has felt harder. On her birthday, of all days, Eliana was admitted for a \u201ctune-up\u201d because of difficult blood pressures and fluid. What was meant to be a quick stay left us with new concerns about how well her dialysis is clearing. Since then, her labs have continued to show challenges \u2014 we\u2019re still working hard to get her BUN and phosphorus under control. The poor clearance has her feeling pretty crummy lately: tired, achy, lots of stomach pain, and just overall \u201cugh.\u201d<\/p>\n<\/div>\n\n\n\n

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And yet, even on those tough mornings, I still see her summon the strength to get out the door to school. She amazes me with her resilience, even when I know she doesn\u2019t feel her best.<\/p>\n<\/div>\n\n\n\n

Looking ahead, I continue to hold onto hope for the future. One possibility that encourages me is the DISOT procedure at Stanford. Unlike traditional transplants, it offers the chance for patients to live without a lifetime of anti-rejection medications. While Eliana\u2019s case is complicated by the BK virus, I\u2019m preparing to talk with the Stanford team very soon to learn if this could be the right path for her and what next steps might look like.<\/p>\n\n\n\n

For now, we\u2019re taking things one step at a time \u2014 balancing school, family, and the constant work of managing her health. Thank you for walking alongside us, for caring about our girl, and for giving us strength when the road feels heavy.<\/p>\n\n\n\n

With love and gratitude,
\ud83d\udc9c Arielle<\/p>\n\n\n\n

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Eliana driving Dan’s boat<\/figcaption><\/figure>\n\n\n\n
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Eliana driving Dan’s boat<\/figcaption><\/figure>\n\n\n\n
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September 2025<\/figcaption><\/figure>\n\n\n\n
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Summer camp 2025<\/figcaption><\/figure>\n\n\n\n
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Birthday at CHOA<\/figcaption><\/figure>\n<\/figure>\n","protected":false},"excerpt":{"rendered":"

Between camps, school, and hospital days, life has been full. I wanted to give an update on how Eliana has been doing \u2014 the fun, the hard, and the hopeful. This summer held so many good moments. Eliana went to camps for softball, theater, and cooking, had an overnight camp through CHOA, and treasured time […]<\/p>\n","protected":false},"author":1174,"featured_media":91,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-82","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry"],"acf":[],"_links":{"self":[{"href":"https:\/\/cota.org\/cotaforeliana\/wp-json\/wp\/v2\/posts\/82","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/cota.org\/cotaforeliana\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/cota.org\/cotaforeliana\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/cota.org\/cotaforeliana\/wp-json\/wp\/v2\/users\/1174"}],"replies":[{"embeddable":true,"href":"https:\/\/cota.org\/cotaforeliana\/wp-json\/wp\/v2\/comments?post=82"}],"version-history":[{"count":0,"href":"https:\/\/cota.org\/cotaforeliana\/wp-json\/wp\/v2\/posts\/82\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/cota.org\/cotaforeliana\/wp-json\/wp\/v2\/media\/91"}],"wp:attachment":[{"href":"https:\/\/cota.org\/cotaforeliana\/wp-json\/wp\/v2\/media?parent=82"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}