The fundraising goal has recently been updated per a conversation between Emily and Scott, and Rick Lofgren, COTA President & CEO. This letter below from Rick explains the recent change:<\/p>\n
Greetings from COTA!<\/p>\n
I want to congratulate the COTA for Emilys Lungs <\/em>volunteer team for raising funds for the campaign in honor of Emily.<\/p>\n When I set the campaign fundraising goals with all of our families, I try to do so knowing that we want to raise funds for several years, and knowing that many families have extensive needs due to health issues that reappear years after a transplant occurs. With this in mind, I suggest goals to COTA patients and parents that I believe is needed for any patient’s long-term expenses and transplant-related costs were. <\/p>\n For example, most of our patients will have $5,000 to $10,000 in annual co-payments, deductibles, and medications, as well as $10,000 or more of additional costs for clinic visits and a similar amount for travel to the transplant center. This could mean $25,000 to $35,000 for these costs alone for any patient in two years after transplant. In Emily’s case, her extended follow-up care will be more costly and I recommended we increase goal in light of these facts.<\/p>\n In this case I spoke with Emily and Scott and suggested that we raise the goal to better reflect what I believe is the true long-term expense that a patient will incur in the future. Because of this, I have raised the goal for the COTA for Emilys Lungs <\/em>campaign from $65,000 to $85,000 to reflect what I believe will be actual costs going forward. <\/p>\n Please know there are many factors in this and that I bear the responsibility of justifying this to anyone who asks, and am happy to do this as I believe that it is the right thing to do given her current health status.<\/p>\n Thank you for all the work and support you have provided to this point, and please keep Emily and Scott in your prayers she prepares to be discharged soon!<\/p>\n","protected":false},"excerpt":{"rendered":" The fundraising goal has recently been updated per a conversation between Emily and Scott, and Rick Lofgren, COTA President & CEO. This letter below from Rick explains the recent change: Greetings from COTA! I want to congratulate the COTA for Emilys Lungs volunteer team for raising funds for the campaign in honor of Emily. When […]<\/p>\n","protected":false},"author":0,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-14","post","type-post","status-publish","format-standard","hentry"],"acf":[],"_links":{"self":[{"href":"https:\/\/cota.org\/cotaforemilyslungs\/wp-json\/wp\/v2\/posts\/14","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/cota.org\/cotaforemilyslungs\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/cota.org\/cotaforemilyslungs\/wp-json\/wp\/v2\/types\/post"}],"replies":[{"embeddable":true,"href":"https:\/\/cota.org\/cotaforemilyslungs\/wp-json\/wp\/v2\/comments?post=14"}],"version-history":[{"count":0,"href":"https:\/\/cota.org\/cotaforemilyslungs\/wp-json\/wp\/v2\/posts\/14\/revisions"}],"wp:attachment":[{"href":"https:\/\/cota.org\/cotaforemilyslungs\/wp-json\/wp\/v2\/media?parent=14"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}