{"id":85,"date":"2024-04-25T15:20:03","date_gmt":"2024-04-25T15:20:03","guid":{"rendered":"https:\/\/cota.org\/cotaforemmadawn\/?p=85"},"modified":"2024-10-03T15:50:23","modified_gmt":"2024-10-03T15:50:23","slug":"post-kasai-saga-a-journey-towards-transplant","status":"publish","type":"post","link":"https:\/\/cota.org\/cotaforemmadawn\/2024\/04\/25\/post-kasai-saga-a-journey-towards-transplant\/","title":{"rendered":"The Post-Kasai Saga: A Journey Towards Transplant"},"content":{"rendered":"\n<p>Emma&#8217;s post-Kasai journey was a rollercoaster ride of uncertainty, setbacks, and unexpected turns. With the verdict of success or failure looming three months post-op, we embarked on a series of follow-ups with a pediatric GI specialist in Dallas, closely monitoring Emma&#8217;s progress through routine blood work. Yet, even amidst this vigilance, ominous signs began to emerge.<\/p>\n\n\n\n<p>About a month post-op, Emma&#8217;s temperature inexplicably spiked, sparking fears of a potential liver infection. The decision to transport her via CareFlight to Dallas for urgent treatment was a harrowing moment, underscoring the fragility of her condition.<\/p>\n\n\n\n<p>As the reality sunk in that the Kasai procedure hadn&#8217;t yielded the desired outcome, the looming possibility of transplant became ever more imminent. Emma was referred for the placement of a nasogastric (NG) tube, a crucial step to facilitate weight gain and prepare her for the challenges ahead.<\/p>\n\n\n\n<p>What followed was a chaotic whirlwind of hospital transfers, conflicting medical opinions, and bureaucratic hurdles. Admitted to our local hospital for the tube placement, we encountered a maze of challenges compounded by ever-changing medical personnel.<\/p>\n\n\n\n<p>While initial interactions were met with understanding and patience, a new doctor&#8217;s arrival brought with it a wave of frustration and disbelief. Driven by rigid timelines and unrealistic expectations, their demands for immediate adherence to a strict feeding schedule seemed out of touch with Emma&#8217;s delicate condition.<\/p>\n\n\n\n<p>Amidst this chaos, our resolve to advocate for Emma&#8217;s well-being remained unwavering. Despite the hurdles and setbacks, we clung to hope, drawing strength from Emma&#8217;s resilience and fortitude. Though the road ahead may be fraught with challenges, we remain committed to navigating it together, guided by love, perseverance, and an unyielding belief in Emma&#8217;s unwavering spirit.&nbsp;<\/p>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"576\" height=\"1024\" src=\"https:\/\/cota.org\/cotaforemmadawn\/wp-content\/uploads\/sites\/6308\/2024\/04\/Emma-Mommy-Blog-4-576x1024.jpeg\" alt=\"\" class=\"wp-image-90\" srcset=\"https:\/\/cota.org\/cotaforemmadawn\/wp-content\/uploads\/sites\/6308\/2024\/04\/Emma-Mommy-Blog-4-576x1024.jpeg 576w, https:\/\/cota.org\/cotaforemmadawn\/wp-content\/uploads\/sites\/6308\/2024\/04\/Emma-Mommy-Blog-4-169x300.jpeg 169w, https:\/\/cota.org\/cotaforemmadawn\/wp-content\/uploads\/sites\/6308\/2024\/04\/Emma-Mommy-Blog-4-768x1365.jpeg 768w, https:\/\/cota.org\/cotaforemmadawn\/wp-content\/uploads\/sites\/6308\/2024\/04\/Emma-Mommy-Blog-4-864x1536.jpeg 864w, https:\/\/cota.org\/cotaforemmadawn\/wp-content\/uploads\/sites\/6308\/2024\/04\/Emma-Mommy-Blog-4.jpeg 1031w\" sizes=\"auto, (max-width: 576px) 100vw, 576px\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"967\" height=\"1024\" src=\"https:\/\/cota.org\/cotaforemmadawn\/wp-content\/uploads\/sites\/6308\/2024\/04\/Flight-Blog-4-967x1024.jpeg\" alt=\"\" class=\"wp-image-92\" style=\"width:622px;height:auto\" srcset=\"https:\/\/cota.org\/cotaforemmadawn\/wp-content\/uploads\/sites\/6308\/2024\/04\/Flight-Blog-4-967x1024.jpeg 967w, https:\/\/cota.org\/cotaforemmadawn\/wp-content\/uploads\/sites\/6308\/2024\/04\/Flight-Blog-4-283x300.jpeg 283w, https:\/\/cota.org\/cotaforemmadawn\/wp-content\/uploads\/sites\/6308\/2024\/04\/Flight-Blog-4-768x813.jpeg 768w, https:\/\/cota.org\/cotaforemmadawn\/wp-content\/uploads\/sites\/6308\/2024\/04\/Flight-Blog-4-1451x1536.jpeg 1451w, https:\/\/cota.org\/cotaforemmadawn\/wp-content\/uploads\/sites\/6308\/2024\/04\/Flight-Blog-4.jpeg 1620w\" sizes=\"auto, (max-width: 967px) 100vw, 967px\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"768\" height=\"1024\" src=\"https:\/\/cota.org\/cotaforemmadawn\/wp-content\/uploads\/sites\/6308\/2024\/04\/Emma-Blog-4-768x1024.jpeg\" alt=\"\" class=\"wp-image-93\" style=\"width:624px;height:auto\" srcset=\"https:\/\/cota.org\/cotaforemmadawn\/wp-content\/uploads\/sites\/6308\/2024\/04\/Emma-Blog-4-768x1024.jpeg 768w, https:\/\/cota.org\/cotaforemmadawn\/wp-content\/uploads\/sites\/6308\/2024\/04\/Emma-Blog-4-225x300.jpeg 225w, https:\/\/cota.org\/cotaforemmadawn\/wp-content\/uploads\/sites\/6308\/2024\/04\/Emma-Blog-4-1152x1536.jpeg 1152w, https:\/\/cota.org\/cotaforemmadawn\/wp-content\/uploads\/sites\/6308\/2024\/04\/Emma-Blog-4-1536x2048.jpeg 1536w, https:\/\/cota.org\/cotaforemmadawn\/wp-content\/uploads\/sites\/6308\/2024\/04\/Emma-Blog-4-scaled.jpeg 1920w\" sizes=\"auto, (max-width: 768px) 100vw, 768px\" \/><\/figure>\n","protected":false},"excerpt":{"rendered":"<p>Emma&#8217;s post-Kasai journey was a rollercoaster ride of uncertainty, setbacks, and unexpected turns. With the verdict of success or failure looming three months post-op, we embarked on a series of follow-ups with a pediatric GI specialist in Dallas, closely monitoring Emma&#8217;s progress through routine blood work. Yet, even amidst this vigilance, ominous signs began to [&hellip;]<\/p>\n","protected":false},"author":1891,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-85","post","type-post","status-publish","format-standard","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v26.6 (Yoast SEO v26.6) - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>The Post-Kasai Saga: A Journey Towards Transplant - COTA for Emma Dawn<\/title>\n<meta name=\"description\" content=\"Post-Kasai Saga: A Journey Towards Transplant\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/cota.org\/cotaforemmadawn\/2024\/04\/25\/post-kasai-saga-a-journey-towards-transplant\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"The Post-Kasai Saga: A Journey Towards Transplant\" \/>\n<meta property=\"og:description\" content=\"Post-Kasai Saga: A Journey Towards Transplant\" \/>\n<meta property=\"og:url\" content=\"https:\/\/cota.org\/cotaforemmadawn\/2024\/04\/25\/post-kasai-saga-a-journey-towards-transplant\/\" \/>\n<meta property=\"og:site_name\" content=\"COTA for Emma Dawn\" \/>\n<meta property=\"article:published_time\" content=\"2024-04-25T15:20:03+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-10-03T15:50:23+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/cota.org\/cotaforemmadawn\/wp-content\/uploads\/sites\/6308\/2024\/04\/Emma-Mommy-Blog-4-576x1024.jpeg\" \/>\n<meta name=\"author\" content=\"amberparkhurst\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"amberparkhurst\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/cota.org\/cotaforemmadawn\/2024\/04\/25\/post-kasai-saga-a-journey-towards-transplant\/\",\"url\":\"https:\/\/cota.org\/cotaforemmadawn\/2024\/04\/25\/post-kasai-saga-a-journey-towards-transplant\/\",\"name\":\"The Post-Kasai Saga: A Journey Towards Transplant - 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