{"id":258,"date":"2026-05-13T22:32:16","date_gmt":"2026-05-13T22:32:16","guid":{"rendered":"https:\/\/cota.org\/cotaforemmy\/?p=258"},"modified":"2026-05-13T22:32:17","modified_gmt":"2026-05-13T22:32:17","slug":"32-days-away-from-surgery","status":"publish","type":"post","link":"https:\/\/cota.org\/cotaforemmy\/2026\/05\/13\/32-days-away-from-surgery\/","title":{"rendered":"32 days away from surgery!"},"content":{"rendered":"\n<p>We have gotten into a decent groove around here. Dinner time is definitely the hardest. Most nights Emmy chooses to play upstairs while we eat dinner but there have been a few times she has wanted to join us at the table with her little bowl of jello! The smell of food is hardest for her to push through because it makes her miss it so much. Current jello and popsicle rating:<\/p>\n\n\n\n<p>Jello flavors: 1) Welch\u2019s strawberry peach 2) Sonic Cherry Lime Aid 3) Starburst &#8211; All Pink<\/p>\n\n\n\n<p>Popsicles: 1) Jonny Pops &#8211; Strawbery Lemonade 2) Jonny Pops &#8211; Cotton Candy 3) Jonny Pops &#8211; Summer Sunrise<\/p>\n\n\n\n<p>She is doing an amazing job staying strong and mostly positive which is so much better than I would do!! 1 more month to go!&nbsp;<img loading=\"lazy\" decoding=\"async\" height=\"16\" width=\"16\" alt=\"\ud83d\udcaa\" src=\"https:\/\/static.xx.fbcdn.net\/images\/emoji.php\/v9\/tb\/2\/16\/1f4aa.png\"><\/p>\n\n\n\n<p>The feeding tube she has in is only good for 30 days so she is scheduled to get hers replaced next Tuesday the 12th. They will remove this one and place a new one in her other nare which is much needed because the skin on her left cheek is getting pretty angry under the adhesives. I\u2019m having to reach back to my burn unit days for some wound care tricks!!<\/p>\n\n\n\n<p>Home school is going well. We are so proud of her ability and willingness to lock in and get her work done! She\u2019s missed quite a bit of school at the end of last year and throughout this year so we are working hard and filling in the gaps with Ms Michelle\u2019s help.&nbsp;<img loading=\"lazy\" decoding=\"async\" height=\"16\" width=\"16\" alt=\"\ud83d\udc9c\" src=\"https:\/\/static.xx.fbcdn.net\/images\/emoji.php\/v9\/t35\/2\/16\/1f49c.png\">&nbsp;Emmy finished reading Charlotte\u2019s Web last week. I\u2019m sure everyone remembers the first book that made them cry, this was Emmy\u2019s!! She has such a love for animals and bugs so the ending definitely brought some sadness. Her and I are going to see the play next week as a celebration for finishing it!<\/p>\n\n\n\n<p>The girls\u2019 aunt Dani got them a super special present that they are loving! They are bracelets that the girls can send vibrations to each other on. If one wants to say \u201cI love you\u201d or \u201cI miss you\u201d to the other, they tap the bracelet a certain way and they other persons lights up a specific color and does a specific vibration pattern. They have been using it when Avery\u2019s at school and are really looking forward to having it for the 3-ish weeks they will be apart starting June 1st. Big big thank you to Aunt Dani. I had never heard of such a thing!<\/p>\n\n\n\n<figure class=\"wp-block-gallery has-nested-images columns-default is-cropped wp-block-gallery-1 is-layout-flex wp-block-gallery-is-layout-flex\">\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"768\" height=\"1024\" data-id=\"262\" src=\"https:\/\/cota.org\/cotaforemmy\/wp-content\/uploads\/sites\/6724\/2026\/05\/688959110_10236664567689060_5598067704571022058_n-768x1024.jpg\" alt=\"\" class=\"wp-image-262\" srcset=\"https:\/\/cota.org\/cotaforemmy\/wp-content\/uploads\/sites\/6724\/2026\/05\/688959110_10236664567689060_5598067704571022058_n-768x1024.jpg 768w, https:\/\/cota.org\/cotaforemmy\/wp-content\/uploads\/sites\/6724\/2026\/05\/688959110_10236664567689060_5598067704571022058_n-225x300.jpg 225w, https:\/\/cota.org\/cotaforemmy\/wp-content\/uploads\/sites\/6724\/2026\/05\/688959110_10236664567689060_5598067704571022058_n-1152x1536.jpg 1152w, 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https:\/\/cota.org\/cotaforemmy\/wp-content\/uploads\/sites\/6724\/2026\/05\/690614600_10236664568169072_1147256780302406710_n.jpg 1536w\" sizes=\"auto, (max-width: 768px) 100vw, 768px\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"768\" height=\"1024\" data-id=\"263\" src=\"https:\/\/cota.org\/cotaforemmy\/wp-content\/uploads\/sites\/6724\/2026\/05\/689243647_10236664591009643_3872241879792774353_n-768x1024.jpg\" alt=\"\" class=\"wp-image-263\" srcset=\"https:\/\/cota.org\/cotaforemmy\/wp-content\/uploads\/sites\/6724\/2026\/05\/689243647_10236664591009643_3872241879792774353_n-768x1024.jpg 768w, https:\/\/cota.org\/cotaforemmy\/wp-content\/uploads\/sites\/6724\/2026\/05\/689243647_10236664591009643_3872241879792774353_n-225x300.jpg 225w, https:\/\/cota.org\/cotaforemmy\/wp-content\/uploads\/sites\/6724\/2026\/05\/689243647_10236664591009643_3872241879792774353_n-1152x1536.jpg 1152w, https:\/\/cota.org\/cotaforemmy\/wp-content\/uploads\/sites\/6724\/2026\/05\/689243647_10236664591009643_3872241879792774353_n.jpg 1536w\" sizes=\"auto, (max-width: 768px) 100vw, 768px\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"768\" height=\"1024\" data-id=\"259\" src=\"https:\/\/cota.org\/cotaforemmy\/wp-content\/uploads\/sites\/6724\/2026\/05\/690700237_10236664568729086_2212212936863703328_n-768x1024.jpg\" alt=\"\" class=\"wp-image-259\" srcset=\"https:\/\/cota.org\/cotaforemmy\/wp-content\/uploads\/sites\/6724\/2026\/05\/690700237_10236664568729086_2212212936863703328_n-768x1024.jpg 768w, https:\/\/cota.org\/cotaforemmy\/wp-content\/uploads\/sites\/6724\/2026\/05\/690700237_10236664568729086_2212212936863703328_n-225x300.jpg 225w, https:\/\/cota.org\/cotaforemmy\/wp-content\/uploads\/sites\/6724\/2026\/05\/690700237_10236664568729086_2212212936863703328_n-1152x1536.jpg 1152w, https:\/\/cota.org\/cotaforemmy\/wp-content\/uploads\/sites\/6724\/2026\/05\/690700237_10236664568729086_2212212936863703328_n.jpg 1536w\" sizes=\"auto, (max-width: 768px) 100vw, 768px\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"768\" data-id=\"260\" src=\"https:\/\/cota.org\/cotaforemmy\/wp-content\/uploads\/sites\/6724\/2026\/05\/690730779_10236664568289075_3945180078020411076_n-1024x768.jpg\" alt=\"\" class=\"wp-image-260\" srcset=\"https:\/\/cota.org\/cotaforemmy\/wp-content\/uploads\/sites\/6724\/2026\/05\/690730779_10236664568289075_3945180078020411076_n-1024x768.jpg 1024w, https:\/\/cota.org\/cotaforemmy\/wp-content\/uploads\/sites\/6724\/2026\/05\/690730779_10236664568289075_3945180078020411076_n-300x225.jpg 300w, https:\/\/cota.org\/cotaforemmy\/wp-content\/uploads\/sites\/6724\/2026\/05\/690730779_10236664568289075_3945180078020411076_n-768x576.jpg 768w, https:\/\/cota.org\/cotaforemmy\/wp-content\/uploads\/sites\/6724\/2026\/05\/690730779_10236664568289075_3945180078020411076_n-1536x1152.jpg 1536w, https:\/\/cota.org\/cotaforemmy\/wp-content\/uploads\/sites\/6724\/2026\/05\/690730779_10236664568289075_3945180078020411076_n.jpg 2048w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n<\/figure>\n","protected":false},"excerpt":{"rendered":"<p>We have gotten into a decent groove around here. Dinner time is definitely the hardest. Most nights Emmy chooses to play upstairs while we eat dinner but there have been a few times she has wanted to join us at the table with her little bowl of jello! The smell of food is hardest for [&hellip;]<\/p>\n","protected":false},"author":2499,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-258","post","type-post","status-publish","format-standard","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v26.6 (Yoast SEO v26.6) - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>32 days away from surgery! - COTA for Emmy<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/cota.org\/cotaforemmy\/2026\/05\/13\/32-days-away-from-surgery\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"32 days away from surgery!\" \/>\n<meta property=\"og:description\" content=\"We have gotten into a decent groove around here. Dinner time is definitely the hardest. Most nights Emmy chooses to play upstairs while we eat dinner but there have been a few times she has wanted to join us at the table with her little bowl of jello! 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