{"id":219,"date":"2024-10-06T16:23:16","date_gmt":"2024-10-06T16:23:16","guid":{"rendered":"https:\/\/cota.org\/cotaforgabrielaswarriors\/?p=219"},"modified":"2024-10-06T16:23:17","modified_gmt":"2024-10-06T16:23:17","slug":"transplant-post-op-day-30-back-in-the-cicu","status":"publish","type":"post","link":"https:\/\/cota.org\/cotaforgabrielaswarriors\/2024\/10\/06\/transplant-post-op-day-30-back-in-the-cicu\/","title":{"rendered":"Transplant Post-Op Day 30: Back in the CICU"},"content":{"rendered":"\n
\n

<\/p>\n\u201c\u2026while crying is human, to lament is Christian. Lament is how those who know what God is like and believe in him address their pain. God is good, but life is hard\u201d (Dark Clouds Deep Mercy, pg. 44).<\/cite><\/blockquote>\n\n\n\n

<\/p>\n\n\n\n

This is the third time Ela has been sent back to the CICU. She was here after the transplant, sent back from the step down unit when she had all those breathing problems due to rejection, then again briefly after the most recent cath that they had to cancel, and now she\u2019s back again. Why? I\u2019m not sure about all the reasons (and I don\u2019t think the doctors know either) but I know that her kidneys are not working well. <\/p>\n\n\n\n

Ela is on meds that her kidneys are sensitive to, including her daily doses of insulin and the extra insulin she needs to get when there is a need for her sugars to be corrected. This poor kidney function prevents her from peeing well, which causes her to retain fluid. That is a bad thing because she is already dealing with fluids in her lungs caused by stiffness in the heart. Add to this a cold and a fever. If you\u2019ve been keeping up with the updates then you read that her last cath was cancelled for a couple of reasons, including a fever. That one was short lived. However, when we arrived at the room this morning, we heard that the fever was back, yet we don\u2019t know why. <\/p>\n\n\n\n

Due to this, the cath\u2014which was rescheduled for Monday\u2014has been re-rescheduled for Tuesday. She\u2019s on Tylenol, antibiotics, and I don\u2019t really know what else. It is a lot! Although I\u2019m understanding things a little better, it is still so much to keep track of. The fever is a new, temporary thing\u2026yet, the sugar levels and daily pokes that accompany it has been a continual thing. Her kidney sensitivities has been a continual thing. Her breathing and stiffness of heart has been a continual thing. Her calcium abnormalities (which no one understands) is still a continual thing. Her plasma cleansings to keep her immunosuppressed has been 3 times a week for the last couple of weeks and potentially more in the week to come. <\/p>\n\n\n\n

It\u2019s hard to believe it but Leslee and I have had a hard time finding positive things to talk about. We\u2019re at the hospital for 12 hours every day and when we get in the car to drive back to the Gift of Life House we struggle to find true, honest, just, pure things to talk about (Phil. 4:8). It mean, it makes sense when most of your day consists of talking and thinking and dealing with your child\u2019s fragile health and the constant reminder of the reality of death. We heard a \u201ccode blue\u201d one or two days ago and later saw a woman sobbing in the hallway. God is good but life is hard. <\/p>\n\n\n\n

I don\u2019t know how to ask you to pray for Ela. Her kidneys, maybe? We\u2019re not praying for a new heart anymore but she\u2019s obviously in need of better health. <\/p>\n\n\n\n

\n
\"\"<\/figure>\n<\/figure>\n","protected":false},"excerpt":{"rendered":"

\u201c\u2026while crying is human, to lament is Christian. Lament is how those who know what God is like and believe in him address their pain. God is good, but life is hard\u201d (Dark Clouds Deep Mercy, pg. 44). This is the third time Ela has been sent back to the CICU. She was here after […]<\/p>\n","protected":false},"author":1911,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-219","post","type-post","status-publish","format-standard","hentry"],"acf":[],"yoast_head":"\nTransplant Post-Op Day 30: Back in the CICU - COTA for Gabriela's Warriors<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/cota.org\/cotaforgabrielaswarriors\/2024\/10\/06\/transplant-post-op-day-30-back-in-the-cicu\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Transplant Post-Op Day 30: Back in the CICU\" \/>\n<meta property=\"og:description\" content=\"\u201c\u2026while crying is human, to lament is Christian. 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