{"id":242,"date":"2024-11-03T02:49:45","date_gmt":"2024-11-03T02:49:45","guid":{"rendered":"https:\/\/cota.org\/cotaforgabrielaswarriors\/?p=242"},"modified":"2024-11-03T02:49:46","modified_gmt":"2024-11-03T02:49:46","slug":"post-transplant-update-day-57","status":"publish","type":"post","link":"https:\/\/cota.org\/cotaforgabrielaswarriors\/2024\/11\/03\/post-transplant-update-day-57\/","title":{"rendered":"Post Transplant Update Day 57"},"content":{"rendered":"\n<p>11\/2\/2024<\/p>\n\n\n\n<p>129 days and counting. 129 days Ela has stayed within the hospital walls. Most of those days she\u2019s been hooked up to many tubes, wires, and\/or machines. Pain and discomfort many of those days. In the whole of life it seems like such a short amount of time, but my does it feel long (and some days seemingly never-ending) to her and to us. To look back on these last several months and reflect on how much she has endured\u2026.<span style=\"text-decoration: underline\">The LORD is good<\/span> and Ela is the strongest little girl. To be in the hospital for so many days and soon be leaving it (hopefully), with a song still in her heart and a smile on her face\u2026.thank you God! I don\u2019t know if I would be so happy and smiley after suffering like she has. Don\u2019t get me wrong, some days she seemed done with it all. Some days the emotions are high. It\u2019s been the hardest season of life for not just Ela, but also for her brothers and her mommy and daddy. Yet, such an abundance of things to be thankful for.  <\/p>\n\n\n\n<p>A week or 2 ago, the therapists and doctors thought we would still be inpatient for another month or two because Ela was in such a rough place. Now, we may be discharged to the <span style=\"text-decoration: underline\">GIFT OF LIFE House<\/span> this upcoming week! <strong><span style=\"text-decoration: underline\">We will remain in Philly for a while longer.<\/span><\/strong> <strong>Cath Results:<\/strong> Her cath today showed <span style=\"text-decoration: underline\">zero rejection!<\/span> Finally, things are starting to work together the way they should in her body. Thank you for praying specifically for this. Not everything is perfect\u2014her antibodies are still higher than they would like but they are stable so we will just watch them closely for now; her heart pressures are elevated compared to prior cath, but these will continue to be monitored closely. Her heart failure number (BNP) is also still high but coming down. She has a new set of feeding and GI challenges as well as new endocrine (blood sugar) challenges now. We are learning the world of diabetes. Her kidneys are stable, but will need to be monitored closely as well. If she gets sick we will have to do emergency dose steroids and bring her back to CHOP to be admitted. Talk about nerve-racking! The thought of managing her care outpatient is daunting!  So please pray for me in this area. <\/p>\n\n\n\n<p>Despite the hard, we are so thankful to be on this side of it all. We didn\u2019t know if Ela would get a heart in time. We didn\u2019t know how long we would wait in the hospital for one. We didn\u2019t realize the battles she would face afterwards. We can\u2019t express the overwhelming gratitude we have for the family who chose to give in their darkest hours. We are thankful to God that through it all He is there, even when we can\u2019t see it or feel it. Even in exhaustion, grief, pain and fear. <\/p>\n\n\n\n<p>I would like to end with expressing our gratitude for all of you who faithfully pray, support, and give. You are truly Gabriela\u2019s Warriors (and ours). Those prayers and the intercession of Christ on our behalf get us through those days where we are too angry, too hurt, too exhausted to form any words that express the need. I know some of you have been in that place. The place where you don\u2019t know what to pray. The words physically can\u2019t escape your lips and in your mind all you can think is, \u201cPlease, Lord help. Do something.\u201d God is there in those moments too, and for that I am thankful.<\/p>\n\n\n\n<p>\u201cThe Lord is near to the brokenhearted and saves the crushed in spirit.\u201d<br>\u202d\u202dPsalm\u202c \u202d34\u202c:\u202d18\u202c \u202d<\/p>\n\n\n\n<p>\u201cThe Lord is my shepherd; I shall not want. He makes me lie down in green pastures. He leads me beside still waters. He restores my soul. He leads me in paths of righteousness for his name\u2019s sake. Even though I walk through the valley of the shadow of death, I will fear no evil, for you are with me; your rod and your staff, they comfort me.\u201d<br>\u202d\u202dPsalm\u202c \u202d23\u202c:\u202d1\u202c-\u202d4\u202c \u202d<\/p>\n\n\n\n<p>\u201cGive thanks to the Lord, for he is good, for his steadfast love endures forever.\u201d<br>\u202d\u202dPsalm\u202c \u202d136\u202c:\u202d1\u202c \u202d<\/p>\n\n\n\n<p>Enjoy this older video of Ela from several weeks ago:<\/p>\n\n\n\n<figure class=\"wp-block-video\"><video height=\"720\" style=\"aspect-ratio: 1280 \/ 720;\" width=\"1280\" controls src=\"https:\/\/cota.org\/cotaforgabrielaswarriors\/wp-content\/uploads\/sites\/6275\/2024\/11\/trim.DCE77C32-6ED7-4F47-8DAD-DDB5AC423DC3.mov\"><\/video><\/figure>\n\n\n\n<p>  We will still be in PHILLY for a while longer even after being discharged from hospital (as she will be having multiple appointments\/therapies on weekly basis). <span style=\"text-decoration: underline\">If you desire to send mail to Ela, please do so at this new address: <\/span><\/p>\n\n\n\n<p>Gift of Life Howie\u2019s House<\/p>\n\n\n\n<p> Gabriela Yustiz<\/p>\n\n\n\n<p>401 Callowhill St<\/p>\n\n\n\n<p>Philadelphia, PA 19123<\/p>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"768\" height=\"1024\" src=\"https:\/\/cota.org\/cotaforgabrielaswarriors\/wp-content\/uploads\/sites\/6275\/2024\/11\/86E86919-BAFE-49FC-B3E5-D92DD9B78112-768x1024.jpeg\" alt=\"\" class=\"wp-image-244\" srcset=\"https:\/\/cota.org\/cotaforgabrielaswarriors\/wp-content\/uploads\/sites\/6275\/2024\/11\/86E86919-BAFE-49FC-B3E5-D92DD9B78112-768x1024.jpeg 768w, https:\/\/cota.org\/cotaforgabrielaswarriors\/wp-content\/uploads\/sites\/6275\/2024\/11\/86E86919-BAFE-49FC-B3E5-D92DD9B78112-225x300.jpeg 225w, https:\/\/cota.org\/cotaforgabrielaswarriors\/wp-content\/uploads\/sites\/6275\/2024\/11\/86E86919-BAFE-49FC-B3E5-D92DD9B78112-1152x1536.jpeg 1152w, https:\/\/cota.org\/cotaforgabrielaswarriors\/wp-content\/uploads\/sites\/6275\/2024\/11\/86E86919-BAFE-49FC-B3E5-D92DD9B78112-1536x2048.jpeg 1536w, https:\/\/cota.org\/cotaforgabrielaswarriors\/wp-content\/uploads\/sites\/6275\/2024\/11\/86E86919-BAFE-49FC-B3E5-D92DD9B78112-scaled.jpeg 1920w\" sizes=\"auto, (max-width: 768px) 100vw, 768px\" \/><\/figure>\n","protected":false},"excerpt":{"rendered":"<p>11\/2\/2024 129 days and counting. 129 days Ela has stayed within the hospital walls. Most of those days she\u2019s been hooked up to many tubes, wires, and\/or machines. Pain and discomfort many of those days. In the whole of life it seems like such a short amount of time, but my does it feel long [&hellip;]<\/p>\n","protected":false},"author":1910,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-242","post","type-post","status-publish","format-standard","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v26.6 (Yoast SEO v26.6) - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Post Transplant Update Day 57 - COTA for Gabriela&#039;s Warriors<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/cota.org\/cotaforgabrielaswarriors\/2024\/11\/03\/post-transplant-update-day-57\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Post Transplant Update Day 57\" \/>\n<meta property=\"og:description\" content=\"11\/2\/2024 129 days and counting. 129 days Ela has stayed within the hospital walls. 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