There is no containing Ela\u2019s excitement! Miguel and Josiah are coming to help us pack today and tomorrow (Friday) we will make our way back home! Her medical team is pleased to be sending her on her way. There is an understanding that we all hold a low threshold for anything that might arise that may constitute a trip back up here. But, for now, we are embracing and enjoying this moment\u2014these days\u2014as many as we can get at home, together! <\/p>\n\n\n\n
The song, \u201cThe Goodness of God,\u201d is such a significant and meaningful song to our family. We embraced the reminders of God\u2019s goodness in this song when we were told Ela\u2019s diagnosis 5 years ago. We cried through the song when the pain was too deep to sing it. We taught the song to our kids so that they would remember this truth about God. This song has remained a constant in our family through the years\u2014before, during, and after transplant. <\/p>\n\n\n\n
It seems only fitting that this is the song we chose to work on with our wonderful music therapist during our hospital stay. Below you will find a raw, but genuine recording of this comforting song. In the beginning, you will hear Ela\u2019s HLHS heart, her pre-transplant heartbeat. Dad is playing the guitar. Mom and Ela are singing with the addition of Josiah also joining in the first chorus. You will hear real-life hospital noises and beeps that we chose to leave in as a reminder of where we were in the journey during the various bed-side recording sessions. There will be times Ela\u2019s voice sounds weaker than others\u2026also reminding us of her physical transplant journey. The ending of the song speaks volumes of God\u2019s goodness as you will hear Ela\u2019s new heart-beat, her \u201cgift-of-life donor heart\u201d close the song out along with special messages from family. <\/p>\n\n\n\n