{"id":360,"date":"2025-12-24T03:47:24","date_gmt":"2025-12-24T03:47:24","guid":{"rendered":"https:\/\/cota.org\/cotaforgabrielaswarriors\/?p=360"},"modified":"2025-12-24T03:47:24","modified_gmt":"2025-12-24T03:47:24","slug":"biopsy-update-treatment-plan","status":"publish","type":"post","link":"https:\/\/cota.org\/cotaforgabrielaswarriors\/2025\/12\/24\/biopsy-update-treatment-plan\/","title":{"rendered":"Biopsy Update\/Treatment Plan"},"content":{"rendered":"\n

Biopsy results confirmed that Ela does indeed have antibody-mediated rejection (AMR). Thankfully, it\u2019s grade 1 out of 3. However, this still means a pretty extensive treatment plan. She goes for another sedated procedure Christmas Eve morning where the Interventional Radiology team will suture a double lumen catheter in her neck so that she can start plasmapheresis. Over the next few weeks, yes weeks\u2026..She will do at least 5 rounds of plasmapheresis, continue steroids, and another treatment called rituxinab. After these treatments are completed (probably in about 2 weeks), she will have another cardiac catheterization to see if heart pressures look better and if biopsy still shows signs of rejection or not. The team will also draw a slew of blood tests done in conjunction with the cath. Then, after all the results are in, they will re-assess and see if she still needs further inpatient treatment or if she is at a place that we could do most of the treatment outpatient.<\/p>\n\n\n\n

This is hard news to digest. Definitely not how we envisioned the holidays this year and her birthday. She turns 6 on the 30th. It\u2019s been a rough couple of days. She\u2019s been poked and prodded so many times. She\u2019s in pain, uncomfortable, and confined to her room (meaning we have to tell her that she can\u2019t go to the play room and see other people) until all other testing shows that she isn\u2019t sick with any other things. It doesn\u2019t get easier to watch her suffer. <\/p>\n\n\n\n

There\u2019s a lot of negative right now or at least that\u2019s how it feels. So we are really trying to find the things to be thankful for\u2026It helps put things in perspective and re-focus. <\/p>\n\n\n\n

So\u2026I\u2019m thankful that her AMR is not worse than it is, that we have the Gift of Life House to escape to for a few hours a day, that she gets to enjoy music and art therapy even in her room, she\u2019s still able to eat, for people praying, that Miguel\u2019s been able to be here with me, the boys are taken care of, and that my God who understands suffering is with us in this. He uses suffering for His glory. It is not in vain even if it feels that way sometimes. And I am thankful for Christmas (even in a hospital). Without the very first Christmas there isn\u2019t a Savior, a cross, a resurrection, or an eternal hope. So may my heart, our hearts focus on what Christmas truly is and be joyful in that despite all the disappoint, struggle or grief that may be surrounding us this holiday season.<\/p>\n\n\n\n

There weren\u2019t very many smiley moments today but this was one that we all needed! <\/p>\n\n\n\n

\"\"<\/figure>\n","protected":false},"excerpt":{"rendered":"

Biopsy results confirmed that Ela does indeed have antibody-mediated rejection (AMR). Thankfully, it\u2019s grade 1 out of 3. However, this still means a pretty extensive treatment plan. 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