{"id":418,"date":"2026-04-11T02:03:27","date_gmt":"2026-04-11T02:03:27","guid":{"rendered":"https:\/\/cota.org\/cotaforgabrielaswarriors\/?p=418"},"modified":"2026-04-11T02:03:28","modified_gmt":"2026-04-11T02:03:28","slug":"ela-rejection-treatment-update-4-10-26","status":"publish","type":"post","link":"https:\/\/cota.org\/cotaforgabrielaswarriors\/2026\/04\/11\/ela-rejection-treatment-update-4-10-26\/","title":{"rendered":"Ela Rejection Treatment Update 4\/10\/26"},"content":{"rendered":"\n

Overall, Ela is in good spirits. Her blurry vision is gone (Praise the Lord!) and she continues plasmapheresis, bortezamib, and rituxinab treatments in attempt to get rid of this long term antibody-mediated rejection. The schedule changed some which means we will be in the hospital a little longer than anticipated. Now it\u2019s plasmapheresis and bortezamib on Mondays. Wait a few days for the bortezamib to have its maximum effect. Then, on Thursday repeat plasmapheresis and bortezamib again. Repeat for a total of 4 doses of bortezamib and 6 rounds of plasmapheresis. She will have another heart catheterization w\/ biopsies the last week of April to see if this treatment has worked. Last time we did this treatment course, it worked for few weeks and then we started to see things worsen again. <\/p>\n\n\n\n

Yesterday\u2019s plasmapheresis was\u2026 eventful. She was almost done with it, then suddenly she fell back, started sweating, her skin turned blotchy, blood pressure bottomed out, and she turned pretty blue and pale. She\u2019s never had this happen and she has endured a lot of these plasmapheresis sessions before. Thankfully, she recovered quickly. It does seem like she is having more reactions to things these days.<\/p>\n\n\n\n

Ela really misses her brothers and asks every day when she can go home. Praying this is just a 1 month stay and we can be home sooner rather than later! We fill our days with going to the library, making music, hanging out in the playroom, scavenger hunts, books, games, movies, arts and crafts, and of course still trying to get some school time in as well! She has her moments, as we all would, but really is resilient and has her hospital friends to help pass the time. As you can imagine, the nurses and doctors know her very well by now. Some of her little buddies that were around in December\/January when Ela was last inpatient are still here too. Please pray for them as well. There\u2019s 4 little kiddos around Ela\u2019s age that are still waiting for hearts. I remember that wait.\u2026it\u2019s so so hard. <\/p>\n\n\n\n

I\u2019ll end with the verse that came up on my phone today that I found so encouraging. <\/p>\n\n\n\n

Psalm 145:16-17<\/p>\n\n\n\n

\u201cThe LORD is righteous in all his ways and kind in all his works. The LORD is near to all who call on him in truth.\u201d<\/p>\n\n\n\n

\"\"<\/figure>\n","protected":false},"excerpt":{"rendered":"

Overall, Ela is in good spirits. Her blurry vision is gone (Praise the Lord!) and she continues plasmapheresis, bortezamib, and rituxinab treatments in attempt to get rid of this long term antibody-mediated rejection. The schedule changed some which means we will be in the hospital a little longer than anticipated. Now it\u2019s plasmapheresis and bortezamib […]<\/p>\n","protected":false},"author":1910,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-418","post","type-post","status-publish","format-standard","hentry"],"acf":[],"yoast_head":"\nEla Rejection Treatment Update 4\/10\/26 - COTA for Gabriela's Warriors<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/cota.org\/cotaforgabrielaswarriors\/2026\/04\/11\/ela-rejection-treatment-update-4-10-26\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Ela Rejection Treatment Update 4\/10\/26\" \/>\n<meta property=\"og:description\" content=\"Overall, Ela is in good spirits. 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