{"id":454,"date":"2026-05-17T01:46:48","date_gmt":"2026-05-17T01:46:48","guid":{"rendered":"https:\/\/cota.org\/cotaforgabrielaswarriors\/?p=454"},"modified":"2026-05-17T01:46:49","modified_gmt":"2026-05-17T01:46:49","slug":"ela-update-statistics","status":"publish","type":"post","link":"https:\/\/cota.org\/cotaforgabrielaswarriors\/2026\/05\/17\/ela-update-statistics\/","title":{"rendered":"Ela Update &amp; \u201cStatistics\u201d"},"content":{"rendered":"\n<p>Thankfully, not much to report from this appointment. Ela\u2019s echo still shows thickened (hypertrophy) septum (heart muscle), but it\u2019s not worse. Her cardiac labs look pretty good so far, but we are still waiting for a couple of important ones to come back early next week. The Dr. calls this phase right after extensive rejection treatment the \u201choneymoon\u201d period. I do hope and pray we can stay in this phase for a very long time without her rejection actively damaging her heart even further! For now, we will do monthly infusions via her port as a maintenance treatment for this rejection. But at the slightest increase in cardiac numbers we will have to determine a more rigorous (probably more experimental\/less data infusion like Daratumumab) treatment to possibly keep the rejection at bay. It truly is an appointment by appointment approach. The treatment plan can change quickly with just one lab result. We are very much living day to day, week to week, month to month. <\/p>\n\n\n\n<p>This last admission, we learned some things and are beginning to understand a harsh, scary <em>statistical<\/em> outlook for our precious daughter.  <em>Statistically<\/em>, Ela\u2019s heart won\u2019t last as long as what we had originally expected. <em>Statistically<\/em>, a successful heart transplant with no complication in a child could give that child 10-20 years with the donor heart (so we were told). Given Ela\u2019s complications, <em>statistically<\/em>, she won\u2019t get that 10-20 years. We also learned, <em>statistically<\/em>, the way a patient\u2019s body responds to the 1st transplant is usually how their body responds to a 2nd transplant. Right now, there are around 14 kids at CHOP alone who are waiting for their 1st heart transplant. <\/p>\n\n\n\n<p>Notice, I write <em>statistically<\/em>. I have said it before and I will say it again: <strong>God is not bound by human limitation. He is not bound by statistics<\/strong>. He is all-powerful. He is beyond comprehension. He is limitless in resources. We know God can give her many more years if that\u2019s within His plan. It hurts deeply to think of the alternative, but may the words of Job, be our response in whatever God wills for her life: \u201cAnd he said, \u201cThe Lord gave, and the Lord has taken away; blessed be the name of the Lord.\u201d\u201d<br>\u202d\u202dJob\u202c \u202d1\u202c:\u202d21\u202cb<\/p>\n\n\n\n<p>Right now He is giving\u2026.He gave her this many years already. He gave her a new heart. He is giving us this time with her. He has blessed us abundantly in so many ways. May we bless His name no matter the circumstance.<\/p>\n\n\n\n<p>Now, Ela is no where near needing a 2nd heart transplant yet as long as her coronaries and heart pressures stay like they are. However, she is dealing with chronic rejection. It\u2019s scary stuff. May God give her many good days of life, fun, and memories and I pray we don\u2019t take them for granted. We are thankful to God, her donor and family, and her medical team for the time we do get to cherish with her for however long that is. Her quality of life right now is still so much better than it ever was before transplant. As we continue to walk this road, I\u2019m very often recalling to mind this passage (although probably not often enough): <\/p>\n\n\n\n<p>\u201c\u201cTherefore I tell you, do not be anxious about your life, what you will eat or what you will drink, nor about your body, what you will put on. Is not life more than food, and the body more than clothing? Look at the birds of the air: they neither sow nor reap nor gather into barns, and yet your heavenly Father feeds them. Are you not of more value than they? And which of you by being anxious can add a single hour to his span of life?\u201d<\/p>\n\n\n\n<p>\u201c\u201cTherefore do not be anxious about tomorrow, for tomorrow will be anxious for itself. Sufficient for the day is its own trouble.\u201d<br>\u202d\u202dMatthew\u202c \u202d6\u202c:\u202d25-27;34\u202c \u202d\u202c<\/p>\n\n\n\n<figure class=\"wp-block-gallery has-nested-images columns-default is-cropped wp-block-gallery-1 is-layout-flex wp-block-gallery-is-layout-flex\">\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"768\" data-id=\"459\" src=\"https:\/\/cota.org\/cotaforgabrielaswarriors\/wp-content\/uploads\/sites\/6275\/2026\/05\/IMG_0419-1024x768.jpeg\" alt=\"\" class=\"wp-image-459\" srcset=\"https:\/\/cota.org\/cotaforgabrielaswarriors\/wp-content\/uploads\/sites\/6275\/2026\/05\/IMG_0419-1024x768.jpeg 1024w, https:\/\/cota.org\/cotaforgabrielaswarriors\/wp-content\/uploads\/sites\/6275\/2026\/05\/IMG_0419-300x225.jpeg 300w, https:\/\/cota.org\/cotaforgabrielaswarriors\/wp-content\/uploads\/sites\/6275\/2026\/05\/IMG_0419-768x576.jpeg 768w, https:\/\/cota.org\/cotaforgabrielaswarriors\/wp-content\/uploads\/sites\/6275\/2026\/05\/IMG_0419-1536x1152.jpeg 1536w, https:\/\/cota.org\/cotaforgabrielaswarriors\/wp-content\/uploads\/sites\/6275\/2026\/05\/IMG_0419-2048x1536.jpeg 2048w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"768\" height=\"1024\" data-id=\"460\" src=\"https:\/\/cota.org\/cotaforgabrielaswarriors\/wp-content\/uploads\/sites\/6275\/2026\/05\/IMG_0159-768x1024.jpeg\" alt=\"\" class=\"wp-image-460\" srcset=\"https:\/\/cota.org\/cotaforgabrielaswarriors\/wp-content\/uploads\/sites\/6275\/2026\/05\/IMG_0159-768x1024.jpeg 768w, https:\/\/cota.org\/cotaforgabrielaswarriors\/wp-content\/uploads\/sites\/6275\/2026\/05\/IMG_0159-225x300.jpeg 225w, https:\/\/cota.org\/cotaforgabrielaswarriors\/wp-content\/uploads\/sites\/6275\/2026\/05\/IMG_0159-1152x1536.jpeg 1152w, https:\/\/cota.org\/cotaforgabrielaswarriors\/wp-content\/uploads\/sites\/6275\/2026\/05\/IMG_0159-1536x2048.jpeg 1536w, https:\/\/cota.org\/cotaforgabrielaswarriors\/wp-content\/uploads\/sites\/6275\/2026\/05\/IMG_0159-scaled.jpeg 1920w\" sizes=\"auto, (max-width: 768px) 100vw, 768px\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"768\" height=\"1024\" data-id=\"455\" src=\"https:\/\/cota.org\/cotaforgabrielaswarriors\/wp-content\/uploads\/sites\/6275\/2026\/05\/IMG_0458-768x1024.jpeg\" alt=\"\" class=\"wp-image-455\" srcset=\"https:\/\/cota.org\/cotaforgabrielaswarriors\/wp-content\/uploads\/sites\/6275\/2026\/05\/IMG_0458-768x1024.jpeg 768w, https:\/\/cota.org\/cotaforgabrielaswarriors\/wp-content\/uploads\/sites\/6275\/2026\/05\/IMG_0458-225x300.jpeg 225w, https:\/\/cota.org\/cotaforgabrielaswarriors\/wp-content\/uploads\/sites\/6275\/2026\/05\/IMG_0458-1152x1536.jpeg 1152w, https:\/\/cota.org\/cotaforgabrielaswarriors\/wp-content\/uploads\/sites\/6275\/2026\/05\/IMG_0458-1536x2048.jpeg 1536w, https:\/\/cota.org\/cotaforgabrielaswarriors\/wp-content\/uploads\/sites\/6275\/2026\/05\/IMG_0458-scaled.jpeg 1920w\" sizes=\"auto, (max-width: 768px) 100vw, 768px\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"768\" data-id=\"457\" src=\"https:\/\/cota.org\/cotaforgabrielaswarriors\/wp-content\/uploads\/sites\/6275\/2026\/05\/IMG_0412-1024x768.jpeg\" alt=\"\" class=\"wp-image-457\" srcset=\"https:\/\/cota.org\/cotaforgabrielaswarriors\/wp-content\/uploads\/sites\/6275\/2026\/05\/IMG_0412-1024x768.jpeg 1024w, https:\/\/cota.org\/cotaforgabrielaswarriors\/wp-content\/uploads\/sites\/6275\/2026\/05\/IMG_0412-300x225.jpeg 300w, https:\/\/cota.org\/cotaforgabrielaswarriors\/wp-content\/uploads\/sites\/6275\/2026\/05\/IMG_0412-768x576.jpeg 768w, https:\/\/cota.org\/cotaforgabrielaswarriors\/wp-content\/uploads\/sites\/6275\/2026\/05\/IMG_0412-1536x1152.jpeg 1536w, https:\/\/cota.org\/cotaforgabrielaswarriors\/wp-content\/uploads\/sites\/6275\/2026\/05\/IMG_0412-2048x1536.jpeg 2048w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"768\" data-id=\"458\" src=\"https:\/\/cota.org\/cotaforgabrielaswarriors\/wp-content\/uploads\/sites\/6275\/2026\/05\/IMG_0447-1024x768.jpeg\" alt=\"\" class=\"wp-image-458\" srcset=\"https:\/\/cota.org\/cotaforgabrielaswarriors\/wp-content\/uploads\/sites\/6275\/2026\/05\/IMG_0447-1024x768.jpeg 1024w, https:\/\/cota.org\/cotaforgabrielaswarriors\/wp-content\/uploads\/sites\/6275\/2026\/05\/IMG_0447-300x225.jpeg 300w, https:\/\/cota.org\/cotaforgabrielaswarriors\/wp-content\/uploads\/sites\/6275\/2026\/05\/IMG_0447-768x576.jpeg 768w, https:\/\/cota.org\/cotaforgabrielaswarriors\/wp-content\/uploads\/sites\/6275\/2026\/05\/IMG_0447-1536x1152.jpeg 1536w, https:\/\/cota.org\/cotaforgabrielaswarriors\/wp-content\/uploads\/sites\/6275\/2026\/05\/IMG_0447-2048x1536.jpeg 2048w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n<\/figure>\n\n\n\n<p><\/p>\n\n\n\n<p><\/p>\n\n\n\n<p><\/p>\n\n\n\n<p><\/p>\n\n\n\n<p><\/p>\n\n\n\n<p><\/p>\n\n\n\n<p><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Thankfully, not much to report from this appointment. Ela\u2019s echo still shows thickened (hypertrophy) septum (heart muscle), but it\u2019s not worse. Her cardiac labs look pretty good so far, but we are still waiting for a couple of important ones to come back early next week. The Dr. calls this phase right after extensive rejection [&hellip;]<\/p>\n","protected":false},"author":1910,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-454","post","type-post","status-publish","format-standard","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v26.6 (Yoast SEO v26.6) - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Ela Update &amp; \u201cStatistics\u201d - COTA for Gabriela&#039;s Warriors<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/cota.org\/cotaforgabrielaswarriors\/2026\/05\/17\/ela-update-statistics\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Ela Update &amp; \u201cStatistics\u201d\" \/>\n<meta property=\"og:description\" content=\"Thankfully, not much to report from this appointment. Ela\u2019s echo still shows thickened (hypertrophy) septum (heart muscle), but it\u2019s not worse. Her cardiac labs look pretty good so far, but we are still waiting for a couple of important ones to come back early next week. The Dr. calls this phase right after extensive rejection [&hellip;]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/cota.org\/cotaforgabrielaswarriors\/2026\/05\/17\/ela-update-statistics\/\" \/>\n<meta property=\"og:site_name\" content=\"COTA for Gabriela&#039;s Warriors\" \/>\n<meta property=\"article:published_time\" content=\"2026-05-17T01:46:48+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2026-05-17T01:46:49+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/cota.org\/cotaforgabrielaswarriors\/wp-content\/uploads\/sites\/6275\/2026\/05\/IMG_0419-scaled.jpeg\" \/>\n\t<meta property=\"og:image:width\" content=\"2560\" \/>\n\t<meta property=\"og:image:height\" content=\"1920\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"lesleeyustiz\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"lesleeyustiz\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/cota.org\/cotaforgabrielaswarriors\/2026\/05\/17\/ela-update-statistics\/\",\"url\":\"https:\/\/cota.org\/cotaforgabrielaswarriors\/2026\/05\/17\/ela-update-statistics\/\",\"name\":\"Ela Update &amp; 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