{"id":48,"date":"2020-03-01T00:00:00","date_gmt":"2020-03-01T00:00:00","guid":{"rendered":"https:\/\/cota1.wpengine.com\/cotaforhaydenm\/2020\/03\/01\/update-3-1-20\/"},"modified":"2020-03-01T00:00:00","modified_gmt":"2020-03-01T00:00:00","slug":"update-3-1-20","status":"publish","type":"post","link":"https:\/\/cota.org\/cotaforhaydenm\/2020\/03\/01\/update-3-1-20\/","title":{"rendered":"Update 3\/1\/20"},"content":{"rendered":"<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" style=\"display: block; margin-left: auto; margin-right: auto;\" src=\"https:\/\/cota.org\/uploads\/1775\/images\/Screenshot%202020-03-01%20at%207.33.56%20PM.png\" alt=\"\" width=\"783\" height=\"778\" \/><\/p>\n<p>Hayden finally got to go spend some time with his best friend in Little Rock.&nbsp; It was great to see him smiling and trying to keep up with Preston.&nbsp; He sure loves spending time with him as he says &ldquo;it is never long enough.&rdquo;&nbsp; We have completed two weeks of the Hemo dialysis training.&nbsp; Hayden is starting to get used to dialysis everyday.&nbsp; The first week of training we struggled with blood pressures and him not feeling good.&nbsp; By the end of the second week he was starting to feel and act better.&nbsp; We are hopeful he will feel better this week.&nbsp; Hemo dialysis training is going well.&nbsp; Steve and I are both overwhelmed with how much we have to know and understand.&nbsp; There are over 60 steps to just set up the machine everyday which takes just at an hour to get the machine ready.&nbsp; Hayden will be hooked up to the machine for 2.5 hours each day at home.&nbsp; We may get to take a day break from treatment here and there if he is feeling good.&nbsp; Then it will take an hour to clean up the machine after treatment.&nbsp; We are only the second family Children&rsquo;s Mercy has trained on Hemo dialysis.&nbsp; While we are thankful to be given this option it is a huge responsibility and very intimidating.&nbsp; Please continue to pray for Hayden.&nbsp; He is missing his friends and his home.&nbsp; Sitting in a dialysis bay from 8:00am-5:00pm is difficult for him. We will do blood work on Wednesday to check the viruses and his DSA&rsquo;s.&nbsp; If the viruses are still in his system we may have to come up with a different plan to get rid of them so we can move forward with a transplant.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>&nbsp; &nbsp; &nbsp; Hayden finally got to go spend some time with his best friend in Little Rock.&nbsp; It was great to see him smiling and trying to keep up with Preston.&nbsp; He sure loves spending time with him as he says &ldquo;it is never long enough.&rdquo;&nbsp; We have completed two weeks of the Hemo [&hellip;]<\/p>\n","protected":false},"author":0,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-48","post","type-post","status-publish","format-standard","hentry"],"acf":[],"_links":{"self":[{"href":"https:\/\/cota.org\/cotaforhaydenm\/wp-json\/wp\/v2\/posts\/48","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/cota.org\/cotaforhaydenm\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/cota.org\/cotaforhaydenm\/wp-json\/wp\/v2\/types\/post"}],"replies":[{"embeddable":true,"href":"https:\/\/cota.org\/cotaforhaydenm\/wp-json\/wp\/v2\/comments?post=48"}],"version-history":[{"count":0,"href":"https:\/\/cota.org\/cotaforhaydenm\/wp-json\/wp\/v2\/posts\/48\/revisions"}],"wp:attachment":[{"href":"https:\/\/cota.org\/cotaforhaydenm\/wp-json\/wp\/v2\/media?parent=48"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}