{"id":14,"date":"2024-09-27T18:14:56","date_gmt":"2024-09-27T18:14:56","guid":{"rendered":"https:\/\/cota1.wpengine.com\/cloningsite\/?page_id=14"},"modified":"2026-04-15T17:00:17","modified_gmt":"2026-04-15T17:00:17","slug":"our-story","status":"publish","type":"page","link":"https:\/\/cota.org\/cotaforjuju\/our-story\/","title":{"rendered":"Our Story"},"content":{"rendered":"\n<p><strong>Help Us Support COTA Along Juju\u2019s Kidney Transplant Journey<\/strong><\/p>\n\n\n\n<p>My name is Pavla Hernandez, and I am the proud mother of Junior Lopez \u2014 lovingly known by everyone as \u201cJuju.\u201d \u2764\ufe0f<\/p>\n\n\n\n<p>Juju has been fighting for his life since he was just three months old. In 2011, what started as a simple cold quickly turned into a life-threatening illness. He was diagnosed with Rhino Virus and RSV and was hospitalized at UNC Hospital for five months. During that time, he was placed on a breathing machine&nbsp;and required a G-tube for feeding. For three of those months, we were repeatedly told he might not survive. We were asked to say our goodbyes more than once.<\/p>\n\n\n\n<p>But we never gave up \u2014 and neither did Juju. Through prayers, determination, and support from our family, he pulled through. Doctors warned us that if he survived, he might never walk, talk, or understand his surroundings. Thankfully, Juju proved everyone wrong. He became a happy, aware, and loving child. He came home with a tracheostomy and G-tube and required 24-hour nursing care, but he kept progressing.<\/p>\n\n\n\n<p>By the age of three, Juju learned to walk, breathe on his own, and slowly began eating by mouth. Eventually, he was able to have his breathing tube and G-tube removed. It was a huge victory for our family. He was later diagnosed with Developmental Delay Syndrome, but he continued to thrive.<\/p>\n\n\n\n<p>Over the years, Juju remained on medications. In 2019, we received devastating news \u2014 he had cysts on his kidney, and his kidney function had dropped to 30%. His kidney was failing. Doctors placed him on medication and closely monitored his condition. By late 2023, when his kidney function dropped to 25%, we decided to place him on the kidney transplant list. He was initially placed on the inactive list.<\/p>\n\n\n\n<p>On July 11, 2024, we received a call that his kidney function had dropped to 23% and he was being moved to the active transplant list. We were told to be ready at any time. The very next day, July 12, 2024, we received another call \u2014 they had a very compatible kidney for Juju. We rushed to the hospital, full of hope. Surgery was scheduled for the morning of July 13.<\/p>\n\n\n\n<p>After hours of waiting, the doctor came out with heartbreaking news. They were unable to proceed with the transplant because Juju\u2019s blood vessels were too small for the kidney. Despite years of testing, imaging, MRIs, and evaluations, this issue had not been identified beforehand. Juju underwent surgery and was cut open, only to have the procedure stopped. He was left with a large scar and no transplant.<\/p>\n\n\n\n<p>We later learned that radiology had cleared everything as normal when it wasn\u2019t. This mistake meant Juju went through unnecessary surgery and trauma. We were told he might never qualify for a transplant and could face dialysis for the rest of his life \u2014 at just 13 years old.<\/p>\n\n\n\n<p>After further review, we were referred to a specialized transplant team in Boston, Massachusetts \u2014 over 12 hours away from our home. This means traveling, extended stays, time away from work, and caring for our other three children, all while preparing emotionally and financially for this journey.<\/p>\n\n\n\n<p><strong>Update \u2013 April 1, 2026<\/strong> \ud83d\ude4c<\/p>\n\n\n\n<p>We recently had an appointment in Boston regarding Juju\u2019s transplant. We are now in&nbsp;North Carolina while waiting about a month for him to be placed back on the active transplant list. Once listed, we will return to Boston and remain there until transplant. We are incredibly excited and hopeful \u2014 it has been a long four-year journey.<\/p>\n\n\n\n<p>Juju is now in end-stage renal disease with approximately 5% kidney function. Due to complex anatomy and previous complications, his transplant surgery will be highly specialized and complex. The surgical team has explained that he may require removal of one or both of his native kidneys and that the transplant will involve careful reconstruction of his blood vessels. There are risks including bleeding, infection, graft failure, and possible dialysis after surgery, but the team believes transplantation is still feasible.<\/p>\n\n\n\n<p>The expected recovery includes at least one week in the hospital and close monitoring afterward. Despite the challenges, there are currently no absolute contraindications preventing transplantation, and we are moving forward with hope.<\/p>\n\n\n\n<p><strong>How You Can Help<\/strong><\/p>\n\n\n\n<p>As our family prepares for this life-changing journey, we have partnered with COTA for assistance and are asking for your support. Travel to Boston, lodging, gas, food, time off work, and other transplant-related expenses will place a significant financial burden on our family. I work part-time and care for Juju and my three other children, and COTA will help us focus on what matters most \u2014 Juju\u2019s health.<\/p>\n\n\n\n<p>No donation to COTA for Juju is too small. Every contribution helps us get one step closer to giving Juju the life he deserves.<\/p>\n\n\n\n<p>You can donate to COTA for Juju by clicking on the yellow &#8220;Support this Campaign&#8221; button. You can follow Juju&#8217;s journey on this site!<\/p>\n\n\n\n<p>We are incredibly grateful for your prayers, love, and support of COTA for Juju. Please also consider sharing our story to help us reach more people.<\/p>\n\n\n\n<p>Juju has fought his entire life \u2014 and he deserves this chance. \u2764\ufe0f\ud83d\ude4f<\/p>\n\n\n\n<p>Thank you from the bottom of our hearts.<\/p>\n\n\n\n<p>The Children\u2019s Organ Transplant Association (COTA) helps children and young adults who need a life-saving transplant by providing fundraising assistance and family support. COTA is the nation\u2019s only fundraising organization solely dedicated to raising life-saving dollars in honor of transplant-needy children and young adults. 100% of each contribution made to COTA in honor of our patients helps meet transplant-related expenses. COTA\u2019s services are free to our families, and gifts to COTA are tax deductible to the fullest extent of the law.<\/p>\n\n\n\n<p><\/p>\n\n\n\n<p><strong>Ay\u00fadanos a apoyar el trasplante de ri\u00f1\u00f3n de Juju<\/strong><\/p>\n\n\n\n<p>Mi nombre es Pavla Hernandez y soy la orgullosa madre de Junior Lopez \u2014 conocido con mucho cari\u00f1o por todos como \u201cJuju.\u201d \u2764\ufe0f<\/p>\n\n\n\n<p>Juju ha estado luchando por su vida desde que ten\u00eda apenas tres meses. En 2011, lo que comenz\u00f3 como un simple resfriado r\u00e1pidamente se convirti\u00f3 en una enfermedad que amenazaba su vida. Fue diagnosticado con Rinovirus y RSV, y estuvo hospitalizado en UNC Hospital durante cinco meses. Durante ese tiempo, fue conectado a una m\u00e1quina para respirar y necesit\u00f3 un tubo G para alimentarse. Durante tres de esos meses, constantemente nos dec\u00edan que posiblemente no sobrevivir\u00eda. Nos pidieron que nos despidi\u00e9ramos de \u00e9l m\u00e1s de una vez.<\/p>\n\n\n\n<p>Pero nunca nos rendimos \u2014 y Juju tampoco. A trav\u00e9s de oraciones, determinaci\u00f3n y el apoyo de nuestra familia, logr\u00f3 salir adelante. Los doctores nos advirtieron que, si sobreviv\u00eda, tal vez nunca caminar\u00eda, hablar\u00eda o entender\u00eda su entorno. Afortunadamente, Juju demostr\u00f3 que todos estaban equivocados. Se convirti\u00f3 en un ni\u00f1o feliz, consciente y lleno de amor. Regres\u00f3 a casa con una traqueotom\u00eda y un tubo G, y requer\u00eda cuidado de enfermer\u00eda las 24 horas, pero sigui\u00f3 avanzando.<\/p>\n\n\n\n<p>A los tres a\u00f1os, Juju aprendi\u00f3 a caminar, a respirar por s\u00ed solo y poco a poco comenz\u00f3 a comer por la boca. Con el tiempo, pudo retirarse el tubo de respiraci\u00f3n y el tubo G. Fue una gran victoria para nuestra familia. M\u00e1s adelante, fue diagnosticado con S\u00edndrome de Retraso en el Desarrollo, pero continu\u00f3 progresando.<\/p>\n\n\n\n<p>A lo largo de los a\u00f1os, Juju continu\u00f3 tomando medicamentos. En 2019, recibimos una noticia devastadora \u2014 ten\u00eda quistes en el ri\u00f1\u00f3n y su funci\u00f3n renal hab\u00eda bajado al 30%. Su ri\u00f1\u00f3n estaba fallando. Los doctores le recetaron medicamentos y monitorearon su condici\u00f3n de cerca. Para finales de 2023, cuando su funci\u00f3n renal baj\u00f3 al 25%, decidimos colocarlo en la lista de trasplante de ri\u00f1\u00f3n. Inicialmente, fue colocado en la lista inactiva.<\/p>\n\n\n\n<p>El 11 de julio de 2024, recibimos una llamada inform\u00e1ndonos que su funci\u00f3n renal hab\u00eda bajado al 23% y que ser\u00eda colocado en la lista activa de trasplante. Nos dijeron que estuvi\u00e9ramos listos en cualquier momento. Al d\u00eda siguiente, el 12 de julio de 2024, recibimos otra llamada \u2014 ten\u00edan un ri\u00f1\u00f3n muy compatible para Juju. Corrimos al hospital llenos de esperanza. La cirug\u00eda fue programada para la ma\u00f1ana del 13 de julio.<\/p>\n\n\n\n<p>Despu\u00e9s de horas de espera, el doctor sali\u00f3 con una noticia devastadora. No pudieron proceder con el trasplante porque los vasos sangu\u00edneos de Juju eran demasiado peque\u00f1os para el ri\u00f1\u00f3n. A pesar de a\u00f1os de pruebas, im\u00e1genes, resonancias magn\u00e9ticas y evaluaciones, este problema no se hab\u00eda identificado antes. Juju fue sometido a cirug\u00eda y abierto, solo para que el procedimiento fuera detenido. Qued\u00f3 con una gran cicatriz y sin trasplante.<\/p>\n\n\n\n<p>M\u00e1s tarde supimos que radiolog\u00eda hab\u00eda aprobado todo como normal cuando no lo era. Este error signific\u00f3 que Juju pas\u00f3 por una cirug\u00eda innecesaria y un gran trauma. Nos dijeron que tal vez nunca calificar\u00eda para un trasplante y que podr\u00eda enfrentar di\u00e1lisis por el resto de su vida \u2014 con solo 13 a\u00f1os.<\/p>\n\n\n\n<p>Despu\u00e9s de una revisi\u00f3n m\u00e1s profunda, fuimos referidos a un equipo especializado en trasplantes en Boston, Massachusetts \u2014 a m\u00e1s de 12 horas de nuestro hogar. Esto implica viajes, estad\u00edas prolongadas, tiempo fuera del trabajo y el cuidado de nuestros otros tres hijos, todo mientras nos preparamos emocional y financieramente para este proceso.<\/p>\n\n\n\n<p><strong>Actualizaci\u00f3n \u2013 1 de abril de 2026 <\/strong>\ud83d\ude4c<\/p>\n\n\n\n<p>Recientemente tuvimos una cita en Boston con respecto al trasplante de Juju. Actualmente estamos en Carolina del Norte esperando aproximadamente un mes para que sea colocado nuevamente en la lista activa de trasplante. Una vez que est\u00e9 en la lista, regresaremos a Boston y permaneceremos all\u00ed hasta el trasplante. Estamos incre\u00edblemente emocionados y llenos de esperanza \u2014 ha sido un largo camino de cuatro a\u00f1os.<\/p>\n\n\n\n<p>Juju ahora se encuentra en etapa terminal de enfermedad renal con aproximadamente un 5% de funci\u00f3n renal. Debido a su anatom\u00eda compleja y complicaciones previas, su cirug\u00eda de trasplante ser\u00e1 altamente especializada y compleja. El equipo quir\u00fargico ha explicado que podr\u00eda ser necesario remover uno o ambos de sus ri\u00f1ones nativos y que el trasplante implicar\u00e1 una reconstrucci\u00f3n cuidadosa de sus vasos sangu\u00edneos. Existen riesgos, incluyendo sangrado, infecci\u00f3n, fallo del injerto y posible necesidad de di\u00e1lisis despu\u00e9s de la cirug\u00eda, pero el equipo cree que el trasplante sigue siendo posible.<\/p>\n\n\n\n<p>La recuperaci\u00f3n esperada incluye al menos una semana en el hospital y monitoreo cercano despu\u00e9s. A pesar de los desaf\u00edos, actualmente no hay contraindicaciones absolutas que impidan el trasplante, y seguimos adelante con esperanza.<\/p>\n\n\n\n<p><strong>C\u00f3mo puedes ayudar<\/strong><\/p>\n\n\n\n<p>Mientras nuestra familia se prepara para este viaje que cambiar\u00e1 nuestras vidas, nos hemos asociado con COTA para recibir apoyo y estamos pidiendo su ayuda. Viajar a Boston, hospedaje, gasolina, comida, tiempo fuera del trabajo y otros gastos relacionados con el trasplante representar\u00e1n una gran carga financiera para nuestra familia. Trabajo medio tiempo y cuido de Juju y de mis otros tres hijos, y COTA nos ayudar\u00e1 a enfocarnos en lo m\u00e1s importante \u2014 la salud de Juju.<\/p>\n\n\n\n<p>Ninguna donaci\u00f3n a COTA para Juju es demasiado peque\u00f1a. Cada contribuci\u00f3n nos acerca un paso m\u00e1s a darle a Juju la vida que merece.<\/p>\n\n\n\n<p>Puedes donar a COTA para Juju haciendo clic en el bot\u00f3n amarillo \u201cSupport this Campaign\u201d. \u00a1Tambi\u00e9n puedes seguir el proceso de Juju en este sitio!<\/p>\n\n\n\n<p>Estamos profundamente agradecidos por sus oraciones, amor y apoyo a COTA para Juju. Por favor, considera tambi\u00e9n compartir nuestra historia para ayudarnos a llegar a m\u00e1s personas.<\/p>\n\n\n\n<p>Estamos incre\u00edblemente agradecidos por sus oraciones, amor y apoyo. Por favor, tambi\u00e9n considera compartir nuestra historia para ayudarnos a llegar a m\u00e1s personas.<\/p>\n\n\n\n<p>Juju ha luchado toda su vida \u2014 y merece esta oportunidad. \u2764\ufe0f\ud83d\ude4f<\/p>\n\n\n\n<p>Gracias de todo coraz\u00f3n.<\/p>\n\n\n\n<p><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Help Us Support COTA Along Juju\u2019s Kidney Transplant Journey My name is Pavla Hernandez, and I am the proud mother of Junior Lopez \u2014 lovingly known by everyone as \u201cJuju.\u201d \u2764\ufe0f Juju has been fighting for his life since he was just three months old. In 2011, what started as a simple cold quickly turned [&hellip;]<\/p>\n","protected":false},"author":5,"featured_media":89,"parent":0,"menu_order":0,"comment_status":"open","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-14","page","type-page","status-publish","has-post-thumbnail","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v26.6 (Yoast SEO v26.6) - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Our Story - COTA for Juju<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/cota.org\/cotaforjuju\/our-story\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Our Story\" \/>\n<meta property=\"og:description\" content=\"Help Us Support COTA Along Juju\u2019s Kidney Transplant Journey My name is Pavla Hernandez, and I am the proud mother of Junior Lopez \u2014 lovingly known by everyone as \u201cJuju.\u201d \u2764\ufe0f Juju has been fighting for his life since he was just three months old. 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