{"id":57,"date":"2024-02-11T20:01:18","date_gmt":"2024-02-11T20:01:18","guid":{"rendered":"https:\/\/cota.org\/cotaforledgerstrong\/?p=57"},"modified":"2024-04-22T18:10:48","modified_gmt":"2024-04-22T18:10:48","slug":"february-%e2%9d%a4%ef%b8%8f","status":"publish","type":"post","link":"https:\/\/cota.org\/cotaforledgerstrong\/2024\/02\/11\/february-%e2%9d%a4%ef%b8%8f\/","title":{"rendered":"February \u2764\ufe0f"},"content":{"rendered":"\n

From Lexi \u2764\ufe0f

February is Heart Month \u2764\ufe0f

Most people know that it\u2019s actually my favorite month… because I get to advocate & share so much about Congenital Heart Defects\/HLHS. Yet, this year it\u2019s a little different. I barely have the energy to advocate and continually repeat myself.

This season itself is different. It\u2019s trying to manage a 2 year old and a newborn while your mind is constantly wondering if your 5 year old is fluid overload because everytime you leave the hospital something changes. It\u2019s wanting to be with your husband doting over your newborn baby but having to divide and conquer. Its volleyball games 3 days postpartum because you have enough mom guilt and all you ever dreamed of was being present for your children. It\u2019s randomly sobbing when memories of your child, or even just your family being together cross your mind. It\u2019s living in complete exhaustion but unable to rest because you have to keep yourself distracted. It\u2019s simple being misunderstood when trying to explain your thoughts or how you feel your 5 year old is coping or lack of coping. It\u2019s becoming frustrated because he is a child and where myself as an adult am barely coping I can\u2019t expect him to fully understand his circumstances. It\u2019s everyone offering to help but unable to fully comprehend how easily you\u2019ll become impatient or frustrated when placed in our position. It\u2019s the multiple missed called and unread text messages that your have fully maxed out mentally you can\u2019t even fathom having another conversation.

It\u2019s praying for a heart knowing what that entails for another family.. knowing the bravery it takes to make such a selfless decision. It\u2019s no longer asking for extravagant valentines or birthday presents because your only prayer is for your child to be whole happy and healthy.

But It\u2019s also finding simply joys in your day or being able to bless a family with car troubles because you have been blessed. It\u2019s seeing the strength and resilience of your 5 year old and knowing if he can be brave through all of this so can I. It\u2019s knowing there is purpose in your pain. \u2764\ufe0f\ud83d\udc99

This season is hard but\u2026 It\u2019s just a season. It\u2019s not forever.<\/p>\n\n\n\n

\"\"<\/figure>\n","protected":false},"excerpt":{"rendered":"

From Lexi \u2764\ufe0f February is Heart Month \u2764\ufe0f Most people know that it\u2019s actually my favorite month… because I get to advocate & share so much about Congenital Heart Defects\/HLHS. Yet, this year it\u2019s a little different. I barely have the energy to advocate and continually repeat myself. This season itself is different. 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