{"id":146,"date":"2025-07-12T03:46:00","date_gmt":"2025-07-12T03:46:00","guid":{"rendered":"https:\/\/cota.org\/cotaforlilyslight\/?p=146"},"modified":"2026-06-16T03:48:08","modified_gmt":"2026-06-16T03:48:08","slug":"being-a-mom-to-other-kids-when-you-have-a-medically-fragile-baby","status":"publish","type":"post","link":"https:\/\/cota.org\/cotaforlilyslight\/2025\/07\/12\/being-a-mom-to-other-kids-when-you-have-a-medically-fragile-baby\/","title":{"rendered":"Being a mom to other kids when you have a medically fragile\u00a0baby"},"content":{"rendered":"\n

When I found out about my daughter\u2019s condition, one of my immediate thoughts was, how will I tell Theo? My oldest. How could I tell him that his sister who I was pregnant with would die? We planned to keep the pregnancy even if she died after birth so I would continue to grow and be pregnant for months still. How much would we confuse my older children with this news? My husband and I finally came up with the plan that we would tell my son that we were growing Lily for Jesus. She was in my tummy and Jesus would take her after she was born.<\/p>\n\n\n\n

The next day, we went to a doctor who gave us hope about Lily\u2019s prognosis so we decided to tell our children that Lily would be born really sick and need to be with the doctor for a long time. I was scared for their reaction until Theo said, \u201cLike Early Baby!\u201d I will always be thankful for Bluey because I didn\u2019t have to explain this extremely challenging situation to my son. He already understood because of a Bluey episode about a premature baby. That night, he started to pray for Lily to not be an early baby and for momma to be the bravest she\u2019s ever been. <\/p>\n\n\n\n

While I was pregnant, I thought a lot about how hard it was to have two older kids and go through the hell I was living. But really, those two kids made me get up in the morning. I couldn\u2019t fall into a pit because they needed me. I needed them. I tried my hardest those 15 weeks of pregnancy to make their lives joyful even with the pain. Theo and Catherine kept me afloat when I could have easily lost all hope. <\/p>\n\n\n\n

Then Lily was born. I had to be away from my beautiful children for four and a half months. My husband had to be a single dad during the week before I got to see them Friday, Saturday, and Sunday. We FaceTimed every night. I showed them their sister but they never got to meet her because of cold and flu regulations in the ICN. Our whole family had to be the bravest we\u2019ve ever been. <\/p>\n\n\n\n

There were days when doctors or nurses told me that I needed to go back to Fresno more to be with my other children. They told me that my older kids would remember me being gone and Lily wouldn\u2019t. It felt like a low blow. I thought Theo and Catherine every second of the day. Just because I couldn\u2019t physically be with them didn\u2019t mean that I wasn\u2019t still ordering their groceries and planning how to make Christmas magical at Family House for them. I felt guilty for missing the time with them but I knew that my three days a week with them was all I could do while I took care of their sister. <\/p>\n\n\n\n

Even now that we are home, I don\u2019t get all the time with my older two that I would like. Lily requires a lot of attention. I am only one person. Sometimes the guilt eats me alive as a mom. How can I be better for all three of them? But the moments that make it all come together are when Theo asks Lily, \u201cWho\u2019s got you smiling like that?\u201d Or Catherine says, \u201cThat\u2019s my baby sister.\u201d <\/p>\n\n\n\n

All the sacrifices I have made to bring their sister home were worth it. They wouldn\u2019t trade their sister for the extra time with me. They won\u2019t actually remember the four and a half months when I was away as anything more than the time they got to live in San Francisco while their sister got better. <\/p>\n\n\n\n

I wish I could be in two places at once but the reality is that I can\u2019t. All I can do is my best and that\u2019s what I\u2019m doing for all three of my children. I know that they know just how loved they are and that has to be enough.<\/p>\n\n\n\n

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When I found out about my daughter\u2019s condition, one of my immediate thoughts was, how will I tell Theo? My oldest. How could I tell him that his sister who I was pregnant with would die? 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