{"id":286,"date":"2026-06-14T15:53:24","date_gmt":"2026-06-14T15:53:24","guid":{"rendered":"https:\/\/cota.org\/cotaformagnolia\/?p=286"},"modified":"2026-06-14T15:53:40","modified_gmt":"2026-06-14T15:53:40","slug":"june-12-2026-update","status":"publish","type":"post","link":"https:\/\/cota.org\/cotaformagnolia\/2026\/06\/14\/june-12-2026-update\/","title":{"rendered":"June 12 & 13, 2026 Update"},"content":{"rendered":"\n
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Screenshot<\/figcaption><\/figure>\n\n\n\n

Today we were informed that, because Magnolia\u2019s phosphate levels are still lower than expected, the kidney specialist will now be involved in monitoring her care. We are praying they can find a solution by adjusting her medications or identifying alternatives that will help prevent her phosphate levels from dropping so dramatically. It is typically normal to see phosphate levels decrease after surgery, but by this point they should be stabilizing. Unfortunately, that has not been the case for Magnolia.<\/p>\n\n\n\n

We are praying fervently that her kidneys are functioning well.<\/p>\n\n\n\n

On a positive note, Magnolia received a backyard playset today from the Roc Solid Foundation through a generous sponsor. Rodgers brought volunteers from their company to assemble the playset they donated for Magnolia. We are incredibly grateful that our girl will now have an outdoor playset at home, allowing her to avoid public parks while still enjoying the fun and joy of childhood.<\/p>\n\n\n\n

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Hoy nos informaron que, debido a que los niveles de fosfato de Magnolia siguen siendo m\u00e1s bajos de lo esperado, ahora el especialista en ri\u00f1ones se involucrar\u00e1 en el monitoreo de su atenci\u00f3n m\u00e9dica. Estamos orando para que puedan encontrar una soluci\u00f3n, ya sea ajustando sus medicamentos o encontrando alternativas que ayuden a evitar que sus niveles de fosfato bajen tan dr\u00e1sticamente. Es normal que los niveles de fosfato disminuyan despu\u00e9s de una cirug\u00eda, pero a estas alturas deber\u00edan estar estabiliz\u00e1ndose. Lamentablemente, ese no ha sido el caso para Magnolia.<\/p>\n\n\n\n

Estamos orando fervientemente para que sus ri\u00f1ones est\u00e9n funcionando bien.<\/p>\n\n\n\n

Por otro lado, hoy Magnolia recibi\u00f3 un \u00e1rea de juegos para el patio de parte de la Fundaci\u00f3n Roc Solid, gracias a un generoso patrocinador. Rodgers llev\u00f3 voluntarios de su empresa para armar el juego que donaron para Magnolia. Estamos profundamente agradecidos de que nuestra ni\u00f1a ahora pueda tener un espacio para jugar al aire libre en casa, evitando as\u00ed tener que ir a los parques, pero sin dejar de disfrutar la alegr\u00eda y diversi\u00f3n propias de su infancia.<\/p>\n\n\n\n

—————————————————————————————————<\/p>\n\n\n\n

On Saturday, we received news that Magnolia\u2019s kidneys will continue to be closely monitored as her medications are adjusted. We are praying that her phosphate levels improve and that there is no long-term damage.<\/p>\n\n\n\n

The kidney specialist believes this may be related to the chemotherapy, while the oncology team believes it could be connected to the transplant. We are praying that, whatever the cause may be, the issue will be identified and resolved soon.<\/p>\n\n\n\n

We also met with the oncology team here at Duke. There is a possibility that Magnolia will receive the remainder of her chemotherapy treatments at Duke due to the ongoing care required for her liver transplant, as well as the continued monitoring of her kidneys.<\/p>\n\n\n\n

\n\n\n\n

El Sabado, recibimos noticias de que los ri\u00f1ones de Magnolia continuar\u00e1n siendo monitoreados de cerca mientras ajustan sus medicamentos. Estamos orando para que sus niveles de fosfato mejoren y que no haya ning\u00fan da\u00f1o a largo plazo.<\/p>\n\n\n\n

El especialista en ri\u00f1ones cree que esto podr\u00eda estar relacionado con la quimioterapia, mientras que el equipo de oncolog\u00eda considera que podr\u00eda estar relacionado con el trasplante. Oramos para que, cualquiera que sea la causa, pronto puedan identificarla y resolverla.<\/p>\n\n\n\n

Tambi\u00e9n nos reunimos con el equipo de oncolog\u00eda aqu\u00ed en Duke. Existe la posibilidad de que Magnolia reciba el resto de sus tratamientos de quimioterapia en Duke debido a la atenci\u00f3n continua que requiere su trasplante de h\u00edgado y al monitoreo constante de sus ri\u00f1ones.<\/p>\n","protected":false},"excerpt":{"rendered":"

Today we were informed that, because Magnolia\u2019s phosphate levels are still lower than expected, the kidney specialist will now be involved in monitoring her care. We are praying they can find a solution by adjusting her medications or identifying alternatives that will help prevent her phosphate levels from dropping so dramatically. 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