{"id":101,"date":"2026-07-12T16:31:12","date_gmt":"2026-07-12T16:31:12","guid":{"rendered":"https:\/\/cota.org\/cotaformylinscrankypanky\/?p=101"},"modified":"2026-07-15T16:31:44","modified_gmt":"2026-07-15T16:31:44","slug":"quieter-day","status":"publish","type":"post","link":"https:\/\/cota.org\/cotaformylinscrankypanky\/2026\/07\/12\/quieter-day\/","title":{"rendered":"Quieter day"},"content":{"rendered":"\n<p>The team was chasing sugar highs all night long. Which means, while My was more comfortable and sleeping better than the night before, they had to get finger pokes lots of times. They also had to have their phone checked to compare finger pokes to their CGM and adjust the insulin levels on their pump. This morning we were chasing blood sugars lows. We think the highs are because we are currently running feeds over night since My isn\u2019t consuming enough calories yet. We think the lows are because My isn\u2019t eating much during the day, since the day they got excited, ate a bunch and ended up puking sick and in pain for over 24 hours. The DISC team made some insulin adjustments on My\u2019s pump to account for those two things. We still have the pump in manual mode, because everything is all over the place right now (whether it be blood sugars or the amount My is able to eat). Once things are more stable we should be able to have the pump in auto mode where we won\u2019t have to talk to it quite as much.<\/p>\n\n\n\n<p>By mid-day things had pretty much chilled out. Nausea loomed more mildly in the background. My was pretty sleepy and slept a good 3-4 hours in the middle of the day. We got out on a walk around the 11th floor, paused for an hour for some IV meds and then took another stroll around the first floor. My made jokes \u201cHow many times have you been in that room?\u201d, when we walked past the G.I. waiting room on the first floor. They are getting faster and starting to stand up straighter. When we went to the first floor, we didn\u2019t have to bring a single IV pole with us!<\/p>\n\n\n\n<p>They say it\u2019s still going to be a long time before the poor kid can shower, and they are gifted with my side of the family\u2019s scalp. So today we brought in some dry shampoo. After letting that sit for awhile, I did some dry brushing with a boar bristled brush at the scalp. They said their head felt so much better after. The Twinnies said the brushing after pic is giving Hermione Granger lol.<\/p>\n\n\n\n<p>We\u2019re hoping this nausea will break and will get some more good and energetic My soon! Also, hoping that appetite comes back and the pain goes back down.<\/p>\n\n\n\n<p>Daniel heads back to SD for some important work meetings for a few days starting tomorrow. Since we aren\u2019t allowed to leave My without an adult (not that we have) this means I will be in the hospital 24\/7 Mon-Thur this week. Here\u2019s hoping we get those sugars in check so we don\u2019t have to be woken up for lots of sugar checks and changes. I don\u2019t know what the heck these twins are going to do. The Ronald McDonald House doesn\u2019t want them to do anything alone. They aren\u2019t allowed to go to the gym, even with parents! (They have been little gym rats at the YMCA since we got here since they can\u2019t do their sports they are used to at home.) It\u2019ll be interesting, but once Daniel is back, it\u2019s just 3 more days of the twins and I here before we head home. I can\u2019t even think about that yet.<\/p>\n\n\n\n<figure class=\"wp-block-image\"><img decoding=\"async\" src=\"https:\/\/mylinsangrypancreas.com\/wp-content\/uploads\/2026\/07\/img_6792.jpg?w=768\" alt=\"\" class=\"wp-image-301\" \/><\/figure>\n","protected":false},"excerpt":{"rendered":"<p>The team was chasing sugar highs all night long. Which means, while My was more comfortable and sleeping better than the night before, they had to get finger pokes lots of times. They also had to have their phone checked to compare finger pokes to their CGM and adjust the insulin levels on their pump. [&hellip;]<\/p>\n","protected":false},"author":2564,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-101","post","type-post","status-publish","format-standard","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v26.6 (Yoast SEO v26.6) - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Quieter day - COTA for Mylin&#039;s Cranky Panky<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/cota.org\/cotaformylinscrankypanky\/2026\/07\/12\/quieter-day\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Quieter day\" \/>\n<meta property=\"og:description\" content=\"The team was chasing sugar highs all night long. Which means, while My was more comfortable and sleeping better than the night before, they had to get finger pokes lots of times. They also had to have their phone checked to compare finger pokes to their CGM and adjust the insulin levels on their pump. 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