{"id":108,"date":"2026-07-07T14:39:00","date_gmt":"2026-07-07T14:39:00","guid":{"rendered":"https:\/\/cota.org\/cotaformylinscrankypanky\/?p=108"},"modified":"2026-07-15T16:39:37","modified_gmt":"2026-07-15T16:39:37","slug":"lots-of-pain-nausea","status":"publish","type":"post","link":"https:\/\/cota.org\/cotaformylinscrankypanky\/2026\/07\/07\/lots-of-pain-nausea\/","title":{"rendered":"Lots of Pain &amp; Nausea"},"content":{"rendered":"\n<p>Since the epidural came out My has been down right miserable, in their highest level of pain and extremely nauseous. They have lived with that barf bag at their face for the last 24 hours.<\/p>\n\n\n\n<figure class=\"wp-block-image\"><img decoding=\"async\" src=\"https:\/\/mylinsangrypancreas.com\/wp-content\/uploads\/2026\/07\/img_6657.jpg?w=768\" alt=\"\" class=\"wp-image-221\" \/><\/figure>\n\n\n\n<p>One of the parents from my support group let me know this floor takes a lot more advocating and I am seeing that already. I asked the nurse if we should let pain team know that the pain has been at a 9 all night. She said I could let them know at rounds. I asked what time is rounds? She said all times of day they never know. So I asked do we have a way to contact pain team now, and told her pain team has wanted to know this before it\u2019s been this bad for so long. She said she just gave My pain meds and so let\u2019s wait an hour. My is like I am miserable (My can barely talk through the pain). My is also spitting up more as the morning progresses. I did end up going out and getting the nurse and asking her to contact pain team now please. Pain team ok\u2019d a bolus dose of IV pain meds, so hopefully that helps.<\/p>\n\n\n\n<p>My\u2019s blood sugars began rising through the night and have been over 200. Even with an insulin pump site change, they only got it down to 185. I am going to ask if they have contacted endocrinology, because with the TPIAT they run a tight ship and have a goal of 120 or lower (this is to ensure that the transplanted islet cells are not damaged). Upstairs they were calling endocrinology when the sugars were 140. I\u2019m sure this isn\u2019t helping nausea either. Next sugar check is in 5 minutes so we\u2019ll see how that goes\u2026 188 rising again. Diabetes team wants to adjust insulin again<\/p>\n\n\n\n<p>My is taking several meds orally, and I can\u2019t help but to wonder if the feeds bypassing the stomach in combination with the pill going in the stomach are also making that worse.<\/p>\n\n\n\n<p>On top of that they\u2019ve been giving MiraLAX and it\u2019s causing a mess if you catch my drift. The night nurse in the ICU had asked them to take MiraLax out of the mix for now due to some uncomfortable incidents for My. They didn\u2019t and poor My had to have me leave the room and head to the waiting room 3 times in the middle of the night to change and everything and clean up. I asked the nurse to put it in documentation that both the nurse the night before and My wanted MiraLAX taken off or pretty drastically reduced.<\/p>\n\n\n\n<figure class=\"wp-block-image\"><img decoding=\"async\" src=\"https:\/\/mylinsangrypancreas.com\/wp-content\/uploads\/2026\/07\/img_6659.jpg?w=768\" alt=\"\" class=\"wp-image-222\" \/><figcaption class=\"wp-element-caption\">3am kicked to the waiting room<\/figcaption><\/figure>\n\n\n\n<p>Needless to say this kid is pretty dang miserable right now. They\u2019ve also had hourly finger pricks for blood sugar, drain empties, bed turns, pump site change, g-tube inspections\u2026 so we\u2019ve also both been up the majority of the night.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Since the epidural came out My has been down right miserable, in their highest level of pain and extremely nauseous. They have lived with that barf bag at their face for the last 24 hours. One of the parents from my support group let me know this floor takes a lot more advocating and I [&hellip;]<\/p>\n","protected":false},"author":2564,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-108","post","type-post","status-publish","format-standard","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v26.6 (Yoast SEO v26.6) - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Lots of Pain &amp; Nausea - COTA for Mylin&#039;s Cranky Panky<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/cota.org\/cotaformylinscrankypanky\/2026\/07\/07\/lots-of-pain-nausea\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Lots of Pain &amp; Nausea\" \/>\n<meta property=\"og:description\" content=\"Since the epidural came out My has been down right miserable, in their highest level of pain and extremely nauseous. 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