{"id":6,"date":"2020-08-04T00:00:00","date_gmt":"2020-08-04T00:00:00","guid":{"rendered":"https:\/\/cota1.wpengine.com\/cotafornorasjourney\/2020\/08\/04\/noras-story\/"},"modified":"2020-08-04T00:00:00","modified_gmt":"2020-08-04T00:00:00","slug":"noras-story","status":"publish","type":"post","link":"https:\/\/cota.org\/cotafornorasjourney\/2020\/08\/04\/noras-story\/","title":{"rendered":"Nora’s Story"},"content":{"rendered":"

Thank you for visiting our campaign site and I hope you t\"Augake a moment to read her story.<\/p>\n

Nora’s Story:
Nora was born with a complete atrial ventricular septal defect(she pretty much only had the right side of her heart, left ventricle nonexistent) and Coarctationof her aorta .For those of you who don’t know congential heart defects occurs in 1:100 babies. #chdawareness She was transfered from UTMC Knoxville to Vanderbilt Children’s Hospital Nashville via ambulance and at only a few days old she was having her 1st open heart surgery. The first surgery repaired Coarctation and a band was placed on her pulmonary artery. Nora would later need another open heart to complete the Glen\/DKS procedure. And again a few years later another open heart for the Fontan. In-between open hearts she had MANY heart caths and medication adjustments. She has been on digoxin(discontinued), diuretics, blood pressure, and aspirin all of her life. Nora has struggled with a compromised immune system as well so she was in and out of the hospital often for what most people would experience as a minor illness to her was major. Her most recent complication has been the development of PLE(protein-loosing enteropathy) which occurs in 30% of patients that have the Fontan procedure. She has experienced abdominal bloating, diarrhea, edema, ascites, failure to grow and liver damage from this diagnosis even while being on strong steroids to prevent.
Nora has been on the 1B heart transplant list for a year but due to the severity of her case and the fact that her body function is not allowing her to be nutrionally healthy they want her inpatient to get her as healthy as possible for a new heart. They also believe she needs a heart sooner than later and want her to stay inpatient to be monitored until a new heart becomes available. Her status after being admitted will move her up to the 1A list.
So we wait!<\/p>\n

#Norasvillage
#Norasjourney
#waitingonaheart
#hearttransplant
#chdsurvivor
#NoraJaneWorley
#organdonation
#beanorgandonor<\/p>\n","protected":false},"excerpt":{"rendered":"

Thank you for visiting our campaign site and I hope you take a moment to read her story. Nora’s Story: Nora was born with a complete atrial ventricular septal defect(she pretty much only had the right side of her heart, left ventricle nonexistent) and Coarctationof her aorta .For those of you who don’t know congential […]<\/p>\n","protected":false},"author":0,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-6","post","type-post","status-publish","format-standard","hentry"],"acf":[],"_links":{"self":[{"href":"https:\/\/cota.org\/cotafornorasjourney\/wp-json\/wp\/v2\/posts\/6","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/cota.org\/cotafornorasjourney\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/cota.org\/cotafornorasjourney\/wp-json\/wp\/v2\/types\/post"}],"replies":[{"embeddable":true,"href":"https:\/\/cota.org\/cotafornorasjourney\/wp-json\/wp\/v2\/comments?post=6"}],"version-history":[{"count":0,"href":"https:\/\/cota.org\/cotafornorasjourney\/wp-json\/wp\/v2\/posts\/6\/revisions"}],"wp:attachment":[{"href":"https:\/\/cota.org\/cotafornorasjourney\/wp-json\/wp\/v2\/media?parent=6"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}