{"id":138,"date":"2025-12-03T14:07:00","date_gmt":"2025-12-03T14:07:00","guid":{"rendered":"https:\/\/cota.org\/cotaforobryensjourney\/?p=138"},"modified":"2025-11-23T08:55:09","modified_gmt":"2025-11-23T08:55:09","slug":"https-cota-org-cotaforobryensjourney-blog-interoception-medication-side-effects-behavior","status":"publish","type":"post","link":"https:\/\/cota.org\/cotaforobryensjourney\/2025\/12\/03\/https-cota-org-cotaforobryensjourney-blog-interoception-medication-side-effects-behavior\/","title":{"rendered":"Rebooting the System: The Signal Jam"},"content":{"rendered":"\n<h2 class=\"wp-block-heading\" id=\"h-how-medication-side-effects-mess-with-your-child-s-internet-connection\">How Medication Side Effects Mess with Your Child\u2019s &#8220;Internet Connection&#8221;<\/h2>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\" \/>\n\n\n\n<p><strong><em>The Medical Maze is a daily challenge, and I get it.<\/em><\/strong><br><em>I&#8217;m a 20-year L&amp;D leader and 15-year Medically Complex Mom dedicated to sharing the proven, repeatable systems that help my family find peace <\/em><strong><em>as we go<\/em><\/strong><em>. <\/em><strong><em>Let&#8217;s make this journey easier, together.<\/em><\/strong><\/p>\n\n\n\n<p><em>This is the second of a 4-blog series titled &#8220;Rebooting the System,&#8221; aimed at helping us navigate chaos created by others without losing our cool. And we have another tool for you to download for free at the end of this 5-minute read!<\/em><\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\" \/>\n\n\n\n<div class=\"wp-block-group is-layout-constrained wp-block-group-is-layout-constrained\">\n<h2 class=\"wp-block-heading\" id=\"h-ugh-it-s-the-meds\">Ugh. It&#8217;s The Meds.<\/h2>\n\n\n\n<p>Look, I\u2019m writing this while running on stale hospital cafeteria coffee, a pocket full of crumpled parking tickets, and a whole lot of hope. If you are reading this, you probably are too.<\/p>\n\n\n\n<p>In my day job, I&#8217;ve designed systems training (amongst a zillion other things). I know that a computer program only works if the data going in is clear. If you type in garbage, you get garbage out.<\/p>\n\n\n\n<p>This is exactly what is happening to our <strong>medically complex kids<\/strong>. And the cause is often the very thing saving their lives: the medicine.<\/p>\n\n\n\n<p>We need to talk about a big word: <strong>Interoception<\/strong>.<\/p>\n\n\n\n<div class=\"wp-block-cover\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"559\" class=\"wp-block-cover__image-background wp-image-139\" alt=\"A split-screen image showing parenting life. The left side features a &quot;PARENT FUEL&quot; mug held by a hand with a child's drawing on it, next to a stack of parking tickets and a smartphone displaying the text &quot;Hang in there, Parents! You're doing great.&quot; The right side shows a tablet with a flowchart reading &quot;GOOD FOOD &amp; LOVE IN -&gt; HAPPY KID -&gt; GOOD OUT,&quot; a teddy bear, wooden blocks, children's vitamins, crayons, and a spiral notebook with the word &quot;INTEROCEPTION&quot; written in colorful letters and drawings of a heart and a brain.\" src=\"https:\/\/cota.org\/cotaforobryensjourney\/wp-content\/uploads\/sites\/6504\/2025\/11\/Gemini_Generated_Image_z5qvcxz5qvcxz5qv-1024x559.png\" data-object-fit=\"cover\" srcset=\"https:\/\/cota.org\/cotaforobryensjourney\/wp-content\/uploads\/sites\/6504\/2025\/11\/Gemini_Generated_Image_z5qvcxz5qvcxz5qv-1024x559.png 1024w, https:\/\/cota.org\/cotaforobryensjourney\/wp-content\/uploads\/sites\/6504\/2025\/11\/Gemini_Generated_Image_z5qvcxz5qvcxz5qv-300x164.png 300w, https:\/\/cota.org\/cotaforobryensjourney\/wp-content\/uploads\/sites\/6504\/2025\/11\/Gemini_Generated_Image_z5qvcxz5qvcxz5qv-768x419.png 768w, https:\/\/cota.org\/cotaforobryensjourney\/wp-content\/uploads\/sites\/6504\/2025\/11\/Gemini_Generated_Image_z5qvcxz5qvcxz5qv-1536x838.png 1536w, https:\/\/cota.org\/cotaforobryensjourney\/wp-content\/uploads\/sites\/6504\/2025\/11\/Gemini_Generated_Image_z5qvcxz5qvcxz5qv-2048x1117.png 2048w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><span aria-hidden=\"true\" class=\"wp-block-cover__background has-background-dim\"><\/span><div class=\"wp-block-cover__inner-container is-layout-flow wp-block-cover-is-layout-flow\">\n<p class=\"has-text-align-center has-large-font-size\">Interoception and Happy Kids<\/p>\n<\/div><\/div>\n\n\n\n<h2 class=\"wp-block-heading\" id=\"h-what-is-interoception\">What is Interoception?<\/h2>\n\n\n\n<p><strong>Interoception<\/strong> is just a fancy word for your &#8220;internal sense.&#8221; It is how your brain knows if you are hungry, thirsty, hot, cold, or in pain. Think of it like your body\u2019s internal WiFi signal.<\/p>\n\n\n\n<p>For our kids, <strong>medication side effects<\/strong> can mess with these signals. It\u2019s like a hacker is jamming their WiFi connection. The signal gets fuzzy, static takes over, and messages get lost.<\/p>\n\n\n\n<h2 class=\"wp-block-heading\" id=\"h-turning-the-volume-knobs\">Turning the Volume Knobs<\/h2>\n\n\n\n<p>Medications don&#8217;t just fix illnesses. They change how the body feels from the inside out. <strong>Medication side effects<\/strong> act like volume knobs on your child&#8217;s sensory system.<\/p>\n\n\n\n<h3 class=\"wp-block-heading\" id=\"h-1-the-amplifiers-steroids-stimulants-hormones\">1. The Amplifiers (Steroids, Stimulants, Hormones)<\/h3>\n\n\n\n<p>Some meds turn the volume <strong>WAY UP<\/strong>.<\/p>\n\n\n\n<p>If your child takes steroids or certain hormones, <strong>interoception<\/strong> tells them lies. They don&#8217;t just feel hungry\u2014they feel like they are starving. They don&#8217;t just feel annoyed\u2014they feel furious.<\/p>\n\n\n\n<p>You see a tantrum in the grocery store. They feel a chemical tidal wave inside their body. They can&#8217;t just &#8220;calm down&#8221; because the medicine is revving their engine.<\/p>\n\n\n\n<h3 class=\"wp-block-heading\" id=\"h-2-the-blunters-sedatives-pain-meds-heart-meds\">2. The Blunters (Sedatives, Pain Meds, Heart Meds)<\/h3>\n\n\n\n<p>Some meds turn the volume <strong>WAY DOWN<\/strong>.<\/p>\n\n\n\n<p>These are used to <strong>keep hearts steady<\/strong> or reduce pain. But <strong>medication side effects<\/strong> can also numb feelings of joy or safety. Your child might seem &#8220;checked out&#8221; or zombie-like. They can\u2019t listen to their body because the connection has been cut.<\/p>\n\n\n\n<h2 class=\"wp-block-heading\" id=\"h-why-your-doctor-didn-t-mention-this\">Why Your Doctor Didn\u2019t Mention This<\/h2>\n\n\n\n<p>This is where it gets tricky. As a parent, it\u2019s easy to feel frustrated that nobody warned you about this. You pick up the prescription, read the warning about &#8220;dry mouth,&#8221; but nobody mentions the behavior.<\/p>\n\n\n\n<p>But here is the truth: <strong>We need our doctors.<\/strong> They are heroes at saving lives. They look at blood work, scans, and organ function. Their job is to make sure the heart beats and the lungs breathe. They are focused on <em>survival<\/em>.<\/p>\n\n\n\n<p>But while they are watching the organ, you are watching the whole child.<\/p>\n\n\n\n<p>The doctor sees that the levels are perfect and the medicine is working. And they are right! But you are the one driving home, watching the system crash in the backseat. It\u2019s not that they are hiding information; it\u2019s just that their lens is zoomed in on saving the life, while your lens is zoomed in on living it.<\/p>\n\n\n\n<h2 class=\"wp-block-heading\" id=\"h-what-you-can-do\">What You Can Do<\/h2>\n\n\n\n<p>If your child is struggling, stop and look at the chemistry.<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Are they being &#8220;naughty&#8221;?<\/li>\n\n\n\n<li>Or are the <strong>medication side effects<\/strong> peaking?<\/li>\n<\/ul>\n\n\n\n<p>When <strong>interoception<\/strong> is blocked, your child feels unsafe in their own skin. You aren&#8217;t failing as a parent. You are just parenting through a signal jam.<\/p>\n\n\n\n<p>We can work <em>with<\/em> our doctors. When you know the patterns, you can say, &#8220;Hey Doc, the labs look great, but the <strong>medication side effects<\/strong> are hurting their quality of life. Can we adjust?&#8221; It all starts by keeping track. <\/p>\n<\/div>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\" \/>\n\n\n\n<div class=\"wp-block-group is-layout-constrained wp-block-group-is-layout-constrained\">\n<h3 class=\"wp-block-heading\" id=\"h-free-download-the-chemical-sensory-log\">Free Download: The Chemical\/Sensory Log<\/h3>\n\n\n\n<p>Don&#8217;t guess\u2014track it. Log your child&#8217;s behavior against their medication times. Find the patterns in the chaos so you can have a better conversation with your medical team. <\/p>\n\n\n\n<div class=\"wp-block-buttons is-content-justification-center is-layout-flex wp-container-core-buttons-is-layout-a89b3969 wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button is-style-outline is-style-outline--1\"><a class=\"wp-block-button__link has-green-light-background-color has-background wp-element-button\" href=\"https:\/\/drive.google.com\/file\/d\/1O8hHorQgwbsePj5SwTIZoADakFnFf09n\/view?usp=sharing\"><strong>Select This Button <\/strong>To Get the Tracker (No medical degree required. Just observation.)<\/a><\/div>\n<\/div>\n<\/div>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\" \/>\n\n\n\n<div class=\"wp-block-group is-layout-constrained wp-block-group-is-layout-constrained\">\n<p><strong>Sources:<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><a href=\"https:\/\/www.kelly-mahler.com\/product\/the-interoception-curriculum-a-step-bystep-guide-to-developing-mindful-self-regulation\/\"><em>The Interoception Curriculum<\/em> by Kelly Mahler, OTD<\/a><\/li>\n\n\n\n<li><a href=\"https:\/\/monadelahooke.com\/beyond-behaviors\/\"><em>Beyond Behaviors<\/em> by Dr. Mona Delahooke<\/a><\/li>\n\n\n\n<li><em><a href=\"https:\/\/www.mayoclinic.org\/tests-procedures\/cortisone-shots\/in-depth\/steroids\/art-20045692?cjdata=MXxOfDB8WXww&amp;cjevent=3c02ad2ac82e11f0839900cf0a1cb826&amp;cm_mmc=CJ-_-9069228-_-5250933-_-Evergreen+Link+for+Mayo+Clinic+Diet&amp;utm_source=cj&amp;utm_content=9069228&amp;utm_capaign=3-months\">Mayo Clinic: Corticosteroid-induced side effects<\/a><\/em><\/li>\n\n\n\n<li><a href=\"https:\/\/www.healthline.com\/health\/heart-disease\/beta-blockers\">E<em>verything You Need to Know About Beta Blockers, Healthline<\/em><\/a><\/li>\n<\/ul>\n<\/div>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\" \/>\n\n\n\n<div class=\"wp-block-group is-content-justification-left is-layout-constrained wp-container-core-group-is-layout-12dd3699 wp-block-group-is-layout-constrained\">\n<h2 class=\"wp-block-heading has-text-align-center\" id=\"h-turn-hope-into-action-support-o-s-journey\">Turn Hope Into Action: Support O\u2019s Journey<\/h2>\n\n\n\n<figure class=\"wp-block-image aligncenter size-full\"><img loading=\"lazy\" decoding=\"async\" width=\"448\" height=\"214\" src=\"https:\/\/cota.org\/cotaforobryensjourney\/wp-content\/uploads\/sites\/6504\/2025\/11\/Donate-to-Os-Cota-Button-Small.png\" alt=\"A button that leads to a COTA donation page\" class=\"wp-image-115\" srcset=\"https:\/\/cota.org\/cotaforobryensjourney\/wp-content\/uploads\/sites\/6504\/2025\/11\/Donate-to-Os-Cota-Button-Small.png 448w, https:\/\/cota.org\/cotaforobryensjourney\/wp-content\/uploads\/sites\/6504\/2025\/11\/Donate-to-Os-Cota-Button-Small-300x143.png 300w\" sizes=\"auto, (max-width: 448px) 100vw, 448px\" \/><\/figure>\n\n\n\n<div class=\"wp-block-group is-layout-constrained wp-block-group-is-layout-constrained\">\n<p class=\"has-text-align-center\">The journey of&nbsp;<strong>holding fear and hope<\/strong>&nbsp;requires immense emotional strength, as well as tangible support. The truth is, O\u2019s needs, especially the costs associated with a second transplant, are a battle that no person should face alone.<\/p>\n\n\n\n<p class=\"has-text-align-center\">We are partnering with COTA (Children\u2019s Organ Transplant Association) to secure the funds needed for O\u2019s lifetime of transplant-related care. Your kindness helps us convert our daily anxiety into concrete, sustainable care and gives us the ultimate gift: a brighter future.<\/p>\n\n\n\n<p class=\"has-text-align-center\"><strong>Please consider donating to O\u2019s COTA campaign today. Start by selecting the button below.<\/strong><\/p>\n<\/div>\n<\/div>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\" \/>\n\n\n\n<div class=\"wp-block-group is-nowrap is-layout-flex wp-container-core-group-is-layout-6c531013 wp-block-group-is-layout-flex\">\n\n\n<p class=\"has-text-align-center\"><em><strong>Read Next:<\/strong>&nbsp;Lorium Ipsum <\/em>&#8211; Lorim Ipsum Blog Post Name<\/p>\n\n\n<\/div>\n","protected":false},"excerpt":{"rendered":"<p>How Medication Side Effects Mess with Your Child\u2019s &#8220;Internet Connection&#8221; The Medical Maze is a daily challenge, and I get it.I&#8217;m a 20-year L&amp;D leader and 15-year Medically Complex Mom dedicated to sharing the proven, repeatable systems that help my family find peace as we go. Let&#8217;s make this journey easier, together. This is the [&hellip;]<\/p>\n","protected":false},"author":2149,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-138","post","type-post","status-publish","format-standard","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v26.6 (Yoast SEO v26.6) - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Rebooting the System: The Signal Jam - COTA for Obryen&#039;s Journey<\/title>\n<meta name=\"description\" content=\"Is it naughtiness or the medicine? Learn how medication side effects impact interoception and your child&#039;s ability to regulate.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/cota.org\/cotaforobryensjourney\/2025\/12\/03\/https-cota-org-cotaforobryensjourney-blog-interoception-medication-side-effects-behavior\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Rebooting the System: The Signal Jam\" \/>\n<meta property=\"og:description\" content=\"Is it naughtiness or the medicine? 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