{"id":199,"date":"2025-12-13T17:55:16","date_gmt":"2025-12-13T17:55:16","guid":{"rendered":"https:\/\/cota.org\/cotaforolliefox\/?p=199"},"modified":"2025-12-13T17:55:17","modified_gmt":"2025-12-13T17:55:17","slug":"six-weeks-since-ollies-heart-transplant","status":"publish","type":"post","link":"https:\/\/cota.org\/cotaforolliefox\/2025\/12\/13\/six-weeks-since-ollies-heart-transplant\/","title":{"rendered":"Six Weeks Since Ollie\u2019s Heart Transplant"},"content":{"rendered":"\n<p>\u2728 It\u2019s officially been 6 weeks since Ollie received his miracle heart!<\/p>\n\n\n\n<p>\u2728 And it\u2019s been 2 weeks since he received his plication procedure to help his paralyzed diaphragm begin to work again.<\/p>\n\n\n\n<p>\u2764\ufe0f We are eternally grateful that he received his incredible gift and that he continues to fight and gain strength.\u00a0<\/p>\n\n\n\n<p>\ud83e\udd0d But truthfully\u2026these past 6 weeks have been by far the hardest for us and for Ollie.<\/p>\n\n\n\n<p>Even in the beginning, we saw more progress and had more stamina.<\/p>\n\n\n\n<p>But after 7 months of hospital life and getting to know our happy baby boy when he was rather healthy on the VAD\u2026<\/p>\n\n\n\n<p>\ud83e\udd0d These past 6 weeks of barely getting to hold him, see his face, or hear his voice have been incredibly difficult.<\/p>\n\n\n\n<p>While we are still making tiny steps in the right direction, it\u2019s demanding every ounce of strength and patience we have as parents (and just people in general).<\/p>\n\n\n\n<p>It\u2019s made even more difficult that it\u2019s the holiday season and we had hoped to bring our baby boy home for Christmas.<\/p>\n\n\n\n<p>\ud83e\udd0d But as that dream slips away from us, we turn our focus on just keeping him extubated and making incremental steps toward weaning his breathing support. Knowing that we will bring him home sometime in the early New Year.<\/p>\n\n\n\n<p>The respiratory factors are the major hurdle right now. Because once he is off of the majority of respiratory support, we will get to start working on feeding him by mouth again. Which will likely be the final task before leaving the hospital.<\/p>\n\n\n\n<p>\u2764\ufe0f We want to say that we are so incredibly grateful for all of you. Your well wishes aren\u2019t going unnoticed and some days they are the only thing that keeps us going when we don\u2019t have anything left in the tank.<\/p>\n\n\n\n<p>\ud83d\ude4f We ask for continued prayers for Ollie\u2019s lungs to gain strength, stay clear, and continue to be able to wean off of support.<\/p>\n\n\n\n<p>\ud83d\ude4f Please pray for his immune system to continue to navigate these challenges and accept the new heart as its own.<\/p>\n\n\n\n<p>\ud83d\ude4f Please pray for his spirit as he hasn\u2019t been held much or been able to play these past 6 weeks. We know his playful spirit is still there as when he feels better he is smiley and enjoys songs and books and playful faces around his bed (many of the nurses come to visit and check on him daily).<\/p>\n\n\n\n<p>\ud83d\ude4f And finally please pray for us.<\/p>\n\n\n\n<p>We are doing our absolute best to stay in this race. But most days it feels like running up a sand dune and the peak never seems to get much closer.<\/p>\n\n\n\n<p>\u2764\ufe0f We love you all and pray you have a great holiday season. Hold your loved ones a little closer on Ollie\u2019s behalf. Every day, every breath, and every heart beat is such a gift from God. And we pray you have many more to come!<\/p>\n\n\n\n<p>Love,<\/p>\n\n\n\n<p>The Paytons \u2764\ufe0f<\/p>\n\n\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-28f84493 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"768\" height=\"1024\" src=\"https:\/\/cota.org\/cotaforolliefox\/wp-content\/uploads\/sites\/6556\/2025\/12\/IMG_4475-768x1024.jpeg\" alt=\"\" class=\"wp-image-202\" srcset=\"https:\/\/cota.org\/cotaforolliefox\/wp-content\/uploads\/sites\/6556\/2025\/12\/IMG_4475-768x1024.jpeg 768w, https:\/\/cota.org\/cotaforolliefox\/wp-content\/uploads\/sites\/6556\/2025\/12\/IMG_4475-225x300.jpeg 225w, https:\/\/cota.org\/cotaforolliefox\/wp-content\/uploads\/sites\/6556\/2025\/12\/IMG_4475-1152x1536.jpeg 1152w, https:\/\/cota.org\/cotaforolliefox\/wp-content\/uploads\/sites\/6556\/2025\/12\/IMG_4475-1536x2048.jpeg 1536w, https:\/\/cota.org\/cotaforolliefox\/wp-content\/uploads\/sites\/6556\/2025\/12\/IMG_4475-scaled.jpeg 1920w\" sizes=\"auto, (max-width: 768px) 100vw, 768px\" \/><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"768\" height=\"1024\" src=\"https:\/\/cota.org\/cotaforolliefox\/wp-content\/uploads\/sites\/6556\/2025\/12\/IMG_4474-768x1024.jpeg\" alt=\"\" class=\"wp-image-203\" srcset=\"https:\/\/cota.org\/cotaforolliefox\/wp-content\/uploads\/sites\/6556\/2025\/12\/IMG_4474-768x1024.jpeg 768w, https:\/\/cota.org\/cotaforolliefox\/wp-content\/uploads\/sites\/6556\/2025\/12\/IMG_4474-225x300.jpeg 225w, https:\/\/cota.org\/cotaforolliefox\/wp-content\/uploads\/sites\/6556\/2025\/12\/IMG_4474-1152x1536.jpeg 1152w, https:\/\/cota.org\/cotaforolliefox\/wp-content\/uploads\/sites\/6556\/2025\/12\/IMG_4474-1536x2048.jpeg 1536w, https:\/\/cota.org\/cotaforolliefox\/wp-content\/uploads\/sites\/6556\/2025\/12\/IMG_4474-scaled.jpeg 1920w\" sizes=\"auto, (max-width: 768px) 100vw, 768px\" \/><\/figure>\n<\/div>\n<\/div>\n","protected":false},"excerpt":{"rendered":"<p>\u2728 It\u2019s officially been 6 weeks since Ollie received his miracle heart! \u2728 And it\u2019s been 2 weeks since he received his plication procedure to help his paralyzed diaphragm begin to work again. \u2764\ufe0f We are eternally grateful that he received his incredible gift and that he continues to fight and gain strength.\u00a0 \ud83e\udd0d But [&hellip;]<\/p>\n","protected":false},"author":2264,"featured_media":202,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-199","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v26.6 (Yoast SEO v26.6) - 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