{"id":4,"date":"2022-03-03T00:00:00","date_gmt":"2022-03-03T00:00:00","guid":{"rendered":"https:\/\/cota1.wpengine.com\/cotaforprayforpaige\/our-story\/"},"modified":"2022-03-03T00:00:00","modified_gmt":"2022-03-03T00:00:00","slug":"our-story","status":"publish","type":"page","link":"https:\/\/cota.org\/cotaforprayforpaige\/our-story\/","title":{"rendered":"Our Story"},"content":{"rendered":"<p><iframe loading=\"lazy\" title=\"YouTube video player\" src=\"\/\/www.youtube.com\/embed\/L6i30Pao50Y\" width=\"560\" height=\"315\" frameborder=\"0\" allowfullscreen=\"allowfullscreen\"><\/iframe><\/p>\n<p>&nbsp;<\/p>\n<p>Meet Paige! She is a spunky 6-year-old girl who lives in Maryland with her dad (Mike), mom (Lisa) and 2 sisters (Faith &amp; Hannah). Paige is a sweet and loving child who truly radiates happiness and finds joy in even the littlest of things. She loves God, pizza, unicorns, princesses, riding horses, and pink.<\/p>\n<p>In 2021, Paige was diagnosed with a very rare genetic disease called LRBA Deficiency (lipopolysaccharide-reactive and beige-like anchor protein). It is a genetic disorder that causes fatal autoimmune issues. LRBA is a disease that affects only a few hundred people worldwide.<\/p>\n<p>LRBA is an autoimmune AND immune deficiency disease. People with LRBA are missing the &ldquo;off-button&rdquo; to their immune system.&nbsp; This button tells our bodies to stop fighting a sickness. With LRBA the body doesn&rsquo;t receive that message and starts attacking healthy parts of the body and organs.<\/p>\n<p>LRBA has caused Paige to have multiple bouts of pneumonia, asthma, juvenile arthritis, Loose Anagen Syndrome (hair shaft defect), and severe GI issues. &nbsp;Her doctors believe that because these symptoms have presented themselves at such an early age, the disease will likely be more severe for her.&nbsp;<\/p>\n<p>Fortunately, there is a possible cure for Paige&rsquo;s disease. This April, she will receive a lifesaving bone marrow transplant to restore her immune system function. Her 100% donor match is her little sister, Hannah. Not only does Hannah not have LRBA, but she doesn&rsquo;t even carry the gene; a 12.5% chance of both! Paige and her family&rsquo;s faith in God continues to keep them hopeful for a successful outcome and cure.<\/p>\n<p>While a bone marrow transplant can be a lifesaving cure, it comes with a great deal of medical care.&nbsp; Paige will need to be continually monitored post-transplant for the remainder of her life, with frequent trips to Children&rsquo;s Hospital of Philadelphia. For this reason, Paige and her family have partnered with COTA in preparation for a lifetime of ongoing transplant-related expenses.<\/p>\n<p>Many have asked for ways to help; we ask that you please consider donating to do just that. 100% of the donations will benefit COTA in honor of Paige to assist with a lifetime of transplant related expenses. Any amount truly makes a difference and is greatly appreciated. If you are unable to contribute financially, your continued prayers are equally valued!<\/p>\n<p>&nbsp;<\/p>\n<p>The Children&#8217;s Organ Transplant Association (COTA) helps children and young adults who need a life-saving transplant by providing fundraising assistance and family support. COTA is the nation&rsquo;s only fundraising organization solely dedicated to raising life-saving dollars in honor of transplant-needy children and young adults. 100% of each contribution made to COTA in honor of our patients helps meet transplant-related expenses. COTA&rsquo;s services are free to our families, and gifts to COTA are tax deductible to the fullest extent of the law.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>&nbsp; Meet Paige! She is a spunky 6-year-old girl who lives in Maryland with her dad (Mike), mom (Lisa) and 2 sisters (Faith &amp; Hannah). Paige is a sweet and loving child who truly radiates happiness and finds joy in even the littlest of things. She loves God, pizza, unicorns, princesses, riding horses, and pink. [&hellip;]<\/p>\n","protected":false},"author":0,"featured_media":5,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-4","page","type-page","status-publish","has-post-thumbnail","hentry"],"acf":[],"_links":{"self":[{"href":"https:\/\/cota.org\/cotaforprayforpaige\/wp-json\/wp\/v2\/pages\/4","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/cota.org\/cotaforprayforpaige\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/cota.org\/cotaforprayforpaige\/wp-json\/wp\/v2\/types\/page"}],"replies":[{"embeddable":true,"href":"https:\/\/cota.org\/cotaforprayforpaige\/wp-json\/wp\/v2\/comments?post=4"}],"version-history":[{"count":0,"href":"https:\/\/cota.org\/cotaforprayforpaige\/wp-json\/wp\/v2\/pages\/4\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/cota.org\/cotaforprayforpaige\/wp-json\/wp\/v2\/media\/5"}],"wp:attachment":[{"href":"https:\/\/cota.org\/cotaforprayforpaige\/wp-json\/wp\/v2\/media?parent=4"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}