{"id":94,"date":"2026-08-23T20:13:05","date_gmt":"2026-08-23T20:13:05","guid":{"rendered":"https:\/\/cota.org\/cotaforremi\/?p=94"},"modified":"2026-08-23T20:22:24","modified_gmt":"2026-08-23T20:22:24","slug":"hanging-in-and-holding-on","status":"publish","type":"post","link":"https:\/\/cota.org\/cotaforremi\/2026\/08\/23\/hanging-in-and-holding-on\/","title":{"rendered":"Hanging In and Holding On"},"content":{"rendered":"\n

May 27, 2026
Day 17: Hanging In and Holding On<\/p>\n\n\n\n

We have officially been on this journey for 17 days,
with 13 of those days since Remi’s Kasai procedure.
Recovery has not been a straight line, there have
been ups and downs, unexpected turns, and
moments that have tested us in ways we didn’t
anticipate.
But we are still here, still together, and still so
grateful.
We will be staying in Boston a little while longer to
make sure everything is responding the way it should
in Remi’s tiny body. For those of you who have been
following along and sending love our way: we feel it.
It has helped carry us through days that might<\/p>\n\n\n\n

otherwise have felt impossible.
Thank you for checking in on us. More updates to come.
\u2014 Remi’s Parents<\/p>\n","protected":false},"excerpt":{"rendered":"

May 27, 2026Day 17: Hanging In and Holding On We have officially been on this journey for 17 days,with 13 of those days since Remi’s Kasai procedure.Recovery has not been a straight line, there havebeen ups and downs, unexpected turns, andmoments that have tested us in ways we didn’tanticipate.But we are still here, still together, […]<\/p>\n","protected":false},"author":2583,"featured_media":104,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-94","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry"],"acf":[],"yoast_head":"\nHanging In and Holding On - COTA for Remi<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/cota.org\/cotaforremi\/2026\/08\/23\/hanging-in-and-holding-on\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Hanging In and Holding On\" \/>\n<meta property=\"og:description\" content=\"May 27, 2026Day 17: Hanging In and Holding On We have officially been on this journey for 17 days,with 13 of those days since Remi’s Kasai procedure.Recovery has not been a straight line, there havebeen ups and downs, unexpected turns, andmoments that have tested us in ways we didn’tanticipate.But we are still here, still together, […]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/cota.org\/cotaforremi\/2026\/08\/23\/hanging-in-and-holding-on\/\" \/>\n<meta property=\"og:site_name\" content=\"COTA for Remi\" \/>\n<meta property=\"article:published_time\" content=\"2026-08-23T20:13:05+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2026-08-23T20:22:24+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/cota.org\/cotaforremi\/wp-content\/uploads\/sites\/6788\/2026\/08\/Screenshot-2026-08-23-at-4.12.39-PM.png\" \/>\n\t<meta property=\"og:image:width\" content=\"442\" \/>\n\t<meta property=\"og:image:height\" content=\"552\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"jessicachurchill\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"jessicachurchill\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"1 minute\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/cota.org\\\/cotaforremi\\\/2026\\\/08\\\/23\\\/hanging-in-and-holding-on\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/cota.org\\\/cotaforremi\\\/2026\\\/08\\\/23\\\/hanging-in-and-holding-on\\\/\"},\"author\":{\"name\":\"jessicachurchill\",\"@id\":\"https:\\\/\\\/cota.org\\\/cotaforremi\\\/#\\\/schema\\\/person\\\/02d9365cd06b7987124c446a1cdaca1b\"},\"headline\":\"Hanging In and Holding On\",\"datePublished\":\"2026-08-23T20:13:05+00:00\",\"dateModified\":\"2026-08-23T20:22:24+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/cota.org\\\/cotaforremi\\\/2026\\\/08\\\/23\\\/hanging-in-and-holding-on\\\/\"},\"wordCount\":130,\"commentCount\":0,\"image\":{\"@id\":\"https:\\\/\\\/cota.org\\\/cotaforremi\\\/2026\\\/08\\\/23\\\/hanging-in-and-holding-on\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/cota.org\\\/cotaforremi\\\/wp-content\\\/uploads\\\/sites\\\/6788\\\/2026\\\/08\\\/Screenshot-2026-08-23-at-4.12.39-PM.png\",\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\\\/\\\/cota.org\\\/cotaforremi\\\/2026\\\/08\\\/23\\\/hanging-in-and-holding-on\\\/#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/cota.org\\\/cotaforremi\\\/2026\\\/08\\\/23\\\/hanging-in-and-holding-on\\\/\",\"url\":\"https:\\\/\\\/cota.org\\\/cotaforremi\\\/2026\\\/08\\\/23\\\/hanging-in-and-holding-on\\\/\",\"name\":\"Hanging In and Holding On - 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