{"id":90,"date":"2026-07-04T00:38:03","date_gmt":"2026-07-04T00:38:03","guid":{"rendered":"https:\/\/cota.org\/cotaforsofiasheartjourney\/?p=90"},"modified":"2026-07-09T04:03:56","modified_gmt":"2026-07-09T04:03:56","slug":"day-248-in-the-hospital-day-239-on-the-transplant-list","status":"publish","type":"post","link":"https:\/\/cota.org\/cotaforsofiasheartjourney\/2026\/07\/04\/day-248-in-the-hospital-day-239-on-the-transplant-list\/","title":{"rendered":"Day 248 in the hospital \/ Day 239 on the transplant list:"},"content":{"rendered":"\n

Updates have been harder to write lately because we still aren\u2019t able to share the news we\u2019ve been hoping for. We\u2019re still waiting.
One of the biggest challenges right now is maintaining access for the medication that keeps Sofia\u2019s heart pumping strong. After so many months, we\u2019re running out of good options. She recently had some pretty painful skin breakdown under her PICC line securement device, and there was concern for infection. Thankfully, her labs have looked good so far, and the skin has drastically improved. Her line is showing a lot of wear and tear, so her team is working with Infectious Disease and Interventional Radiology to come up with the best plan moving forward. For now, we\u2019re just grateful this line is still hanging on.
Despite everything, Sofia is still in such good spirits. We\u2019re so thankful for all the fun hospital activities these past couple of weeks that have helped keep her busy. She\u2019s especially been loving crafts and painting lately, and it\u2019s been so sweet to watch her creativity shine.
We\u2019re also incredibly grateful for our neighborhood community, who are going above and beyond tomorrow for the fireworks show. We truly can\u2019t thank our neighbors enough for all of their love and support.
As always, thank you for continuing to pray for Sofia. We continue to trust God\u2019s timing and hold onto hope. \u2764\ufe0f<\/p>\n\n\n\n

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Updates have been harder to write lately because we still aren\u2019t able to share the news we\u2019ve been hoping for. We\u2019re still waiting.One of the biggest challenges right now is maintaining access for the medication that keeps Sofia\u2019s heart pumping strong. After so many months, we\u2019re running out of good options. She recently had some […]<\/p>\n","protected":false},"author":2403,"featured_media":147,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-90","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry"],"acf":[],"yoast_head":"\nDay 248 in the hospital \/ Day 239 on the transplant list: - COTA for Sofia's Heart Journey<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/cota.org\/cotaforsofiasheartjourney\/2026\/07\/04\/day-248-in-the-hospital-day-239-on-the-transplant-list\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Day 248 in the hospital \/ Day 239 on the transplant list:\" \/>\n<meta property=\"og:description\" content=\"Updates have been harder to write lately because we still aren\u2019t able to share the news we\u2019ve been hoping for. 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