{"id":344,"date":"2024-01-09T06:48:46","date_gmt":"2024-01-09T06:48:46","guid":{"rendered":"https:\/\/cota.org\/cotaforteambianca\/?p=344"},"modified":"2024-01-09T06:48:48","modified_gmt":"2024-01-09T06:48:48","slug":"biancas-last-14-months-in-bead-counts","status":"publish","type":"post","link":"https:\/\/cota.org\/cotaforteambianca\/2024\/01\/09\/biancas-last-14-months-in-bead-counts\/","title":{"rendered":"Bianca’s last 14 months in bead counts"},"content":{"rendered":"\n

Hello friends and family!

Note: If you follow us on Facebook, this is a repeat.

I had a monkey on my back… to update Bianca’s beads of courage since being discharged in Nov of 2022!! Anyone curious what Bianca’s last ~14 months look like in beads? Though I lived it… still eye-opening! If you’re not familiar with Beads of Courage… check out the attached picture from November of 2022. Each color\/bead represents one of the items below, or other items not listed here (such as heart surgery, blood infusion, etc).

Hospital admission – 2
PICC removal – 1
Clinic visit – 58
NPO – 31
Dressing change – 28
Echo – 25
Emergency – 4 (two bone breaks, NG replacement and G-tube replacement)
Fever\/precautions – 2
Learning new meds\/parent education – If this is per day\/big transition, then 4; if this is per med, then 21
Nutrition\/diet transitions – 7
Overnight stay – 3
Poke\/blood draw – 29
Procedures – 1 (cath and biopsy)
Anesthesia – 2
Test (X-ray, EKG, pacer check) – 19
Therapy (PT\/OT) – 13
NG removal, 2; NG placement, 2; G-Tube placement – 1; G-tube replacement – 2

Following medication schedule – this is every day (for the rest of her life…)

Special accomplishment –
1. Graduating from using the walker to walk and giving the loaner back to the hospital!
2. Graduating from daily formula feeds and using G-Tube only for meds!
3. Starting preschool and transitioning to five-days a week away from mom\/dad during the day!

It’s been a big, busy year+. We’re so proud of you, Bianca May. Keep being your spunky, strong, and incredible self, little girl! \ud83c\udfe5\ud83c\udf89\ud83c\udfc6\ud83d\udc51\ud83e\ude7a\ud83e\ude7b\ud83d\udc89\ud83e\ude78\ud83d\ude80\ud83c\udf1f<\/p>\n\n\n\n

\n
\"\"<\/figure>\n<\/figure>\n","protected":false},"excerpt":{"rendered":"

Hello friends and family! Note: If you follow us on Facebook, this is a repeat. I had a monkey on my back… to update Bianca’s beads of courage since being discharged in Nov of 2022!! Anyone curious what Bianca’s last ~14 months look like in beads? Though I lived it… still eye-opening! If you’re not […]<\/p>\n","protected":false},"author":1321,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-344","post","type-post","status-publish","format-standard","hentry"],"acf":[],"_links":{"self":[{"href":"https:\/\/cota.org\/cotaforteambianca\/wp-json\/wp\/v2\/posts\/344","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/cota.org\/cotaforteambianca\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/cota.org\/cotaforteambianca\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/cota.org\/cotaforteambianca\/wp-json\/wp\/v2\/users\/1321"}],"replies":[{"embeddable":true,"href":"https:\/\/cota.org\/cotaforteambianca\/wp-json\/wp\/v2\/comments?post=344"}],"version-history":[{"count":0,"href":"https:\/\/cota.org\/cotaforteambianca\/wp-json\/wp\/v2\/posts\/344\/revisions"}],"wp:attachment":[{"href":"https:\/\/cota.org\/cotaforteambianca\/wp-json\/wp\/v2\/media?parent=344"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}