{"id":9,"date":"2021-05-02T00:00:00","date_gmt":"2021-05-02T00:00:00","guid":{"rendered":"https:\/\/cota1.wpengine.com\/cotaforteamryder\/2021\/05\/02\/april-2-2021\/"},"modified":"2021-05-02T00:00:00","modified_gmt":"2021-05-02T00:00:00","slug":"april-2-2021","status":"publish","type":"post","link":"https:\/\/cota.org\/cotaforteamryder\/2021\/05\/02\/april-2-2021\/","title":{"rendered":"April 2, 2021"},"content":{"rendered":"<div dir=\"auto\">Ryder has &nbsp;been on dialysis for 2 weeks now&#8230; still struggling to find some sort of a new routine as it takes time to set up the machine&#8230; plug Ryder into the machine&#8230; have to sanitize like crazy&#8230; no doors open, no windows open, no heat, no air or fans running while doing this. Machine runs for 9 hours while he sleeps&#8230; very temperamental, alarms throughout the night&#8230; check patient line&#8230; not draining properly etc&#8230;&nbsp;then taking apart the machine in the morning&#8230; draining the 2 large bags of fluid waste&#8230; draining the unused 3 bags of fluid, tubing etc&#8230; it&rsquo;s definitely a time consuming and stressful daily process&#8230; but we are all trying to keep a positive attitude for him which is not easy to do as we can not escape each other due to COVID!!<\/div>\n<div dir=\"auto\">Ryder is down to 12 pills daily but still has the 2 injections per week&#8230; not fun!!<\/div>\n<div dir=\"auto\">He is however back to being his silly self&#8230; scars are healing will now be able to ride his bike, exercise and swim!! Definitely positive things to be grateful for&#8230;<\/div>\n<div dir=\"auto\">there are unfortunately other health issues that have arisen&#8230; will have to start on growth hormone daily injections to make sure his bones start to grow, before they fuse, Incase puberty never kicks in&#8230; currently Kaiser is in disagreement with Stanford on that issue so we have red tape health care issues and poor Rachel is playing middle man!!&#8230; possibility of knob knees&#8230; if so he&rsquo;s looking at surgery for that&#8230;<\/div>\n<div dir=\"auto\">Clinic will be once a month at Stanford&#8230; labs from time to time&#8230; have to redo many of his vaccinations as they didn&rsquo;t take&#8230;<\/div>\n<div dir=\"auto\">soon he will go on the active transplant list&#8230; and there is also the possibility of a living donor. With his blood type they say it&rsquo;s about a year wait&#8230; He has been gaining time on the list ever since dialysis started&#8230; just giving him some time with all of what he&rsquo;s just gone thru to pay off&#8230;<\/div>\n<div dir=\"auto\">&nbsp;<\/div>\n","protected":false},"excerpt":{"rendered":"<p>Ryder has &nbsp;been on dialysis for 2 weeks now&#8230; still struggling to find some sort of a new routine as it takes time to set up the machine&#8230; plug Ryder into the machine&#8230; have to sanitize like crazy&#8230; no doors open, no windows open, no heat, no air or fans running while doing this. Machine [&hellip;]<\/p>\n","protected":false},"author":0,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-9","post","type-post","status-publish","format-standard","hentry"],"acf":[],"_links":{"self":[{"href":"https:\/\/cota.org\/cotaforteamryder\/wp-json\/wp\/v2\/posts\/9","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/cota.org\/cotaforteamryder\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/cota.org\/cotaforteamryder\/wp-json\/wp\/v2\/types\/post"}],"replies":[{"embeddable":true,"href":"https:\/\/cota.org\/cotaforteamryder\/wp-json\/wp\/v2\/comments?post=9"}],"version-history":[{"count":0,"href":"https:\/\/cota.org\/cotaforteamryder\/wp-json\/wp\/v2\/posts\/9\/revisions"}],"wp:attachment":[{"href":"https:\/\/cota.org\/cotaforteamryder\/wp-json\/wp\/v2\/media?parent=9"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}