{"id":214,"date":"2026-06-01T19:16:37","date_gmt":"2026-06-01T19:16:37","guid":{"rendered":"https:\/\/cota.org\/cotafortimmy\/?p=214"},"modified":"2026-06-01T19:16:39","modified_gmt":"2026-06-01T19:16:39","slug":"prepping-for-discharge","status":"publish","type":"post","link":"https:\/\/cota.org\/cotafortimmy\/2026\/06\/01\/prepping-for-discharge\/","title":{"rendered":"Prepping for discharge!"},"content":{"rendered":"\n

Tim is being prepped for discharge! After keeping busy building a 2,200-piece Luigi Lego set and beating so many<\/em> levels of Super Mario Bros. U Deluxe, it looks like tomorrow \u2013 a full 4 weeks after his transplant \u2013 will be the day. Knock on wood. Fingers crossed. <\/p>\n\n\n\n

\"\"<\/figure>\n\n\n\n

He\u2019s excited, to say the least. He\u2019s talked about Shay so much<\/em> recently, telling most of the people who come to see him \u2013 therapists, nurses, doctors \u2013 about her, and I know seeing her in just a few days will bring him so much joy. <\/p>\n\n\n\n

His creatinine level has been trending down and is almost in the normal range. He had another round of pheresis today and is scheduled to have at least five more in the outpatient infusion center at the hospital over the next few weeks. <\/p>\n\n\n\n

Transitioning to outpatient care will come with challenges \u2013 new nurses and unfamiliar faces, new treatment settings and setups, and regular lab work not in the comfort or privacy of his own room. I\u2019m sure it\u2019ll be an adjustment, and we\u2019ll have to find some new coping mechanisms to find a path to success.<\/p>\n\n\n\n

\"\"<\/figure>\n\n\n\n

The FSGS recurrence and slow (but very real) response to treatment have definitely thrown a wrench into our plans. Pheresis isn\u2019t a long-term solution. Hopefully, the infusion he received earlier this month will work and, in conjunction with the pheresis, put him into remission. If not, we\u2019ll have to figure out another plan of action, and that could involve a different, much less commonly used<\/em> type of pheresis that targets the fats in his blood. <\/p>\n\n\n\n

Hopefully, we won\u2019t even need to discuss that or other potential treatments. Hopefully, something goes his way for once, and he can get back home to the friends and pets he misses so dearly sooner rather than later.<\/p>\n\n\n\n

\"\"<\/figure>\n\n\n\n

He heard rumors of a discharge parade, so he\u2019s doubly excited about what that might entail. I guess we\u2019ll see what tomorrow brings.<\/p>\n","protected":false},"excerpt":{"rendered":"

Tim is being prepped for discharge! After keeping busy building a 2,200-piece Luigi Lego set and beating so many levels of Super Mario Bros. U Deluxe, it looks like tomorrow \u2013 a full 4 weeks after his transplant \u2013 will be the day. Knock on wood. Fingers crossed.  He\u2019s excited, to say the least. He\u2019s […]<\/p>\n","protected":false},"author":2525,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-214","post","type-post","status-publish","format-standard","hentry"],"acf":[],"yoast_head":"\nPrepping for discharge! - COTA for Timmy<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/cota.org\/cotafortimmy\/2026\/06\/01\/prepping-for-discharge\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Prepping for discharge!\" \/>\n<meta property=\"og:description\" content=\"Tim is being prepped for discharge! After keeping busy building a 2,200-piece Luigi Lego set and beating so many levels of Super Mario Bros. U Deluxe, it looks like tomorrow \u2013 a full 4 weeks after his transplant \u2013 will be the day. Knock on wood. Fingers crossed.  He\u2019s excited, to say the least. 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