{"id":94,"date":"2026-05-13T23:28:49","date_gmt":"2026-05-13T23:28:49","guid":{"rendered":"https:\/\/cota.org\/cotafortimmy\/?p=94"},"modified":"2026-05-13T23:28:50","modified_gmt":"2026-05-13T23:28:50","slug":"a-successful-transplant-and-fsgs-recurrence","status":"publish","type":"post","link":"https:\/\/cota.org\/cotafortimmy\/2026\/05\/13\/a-successful-transplant-and-fsgs-recurrence\/","title":{"rendered":"A successful transplant and FSGS recurrence"},"content":{"rendered":"\n<p>Jacob\u2019s donation and Tim\u2019s transplant went well initially. However, less than 48 hours in, it\u2019s clear that Tim\u2019s FSGS has recurred in the donor kidney. <strong>His surgeon said he hasn\u2019t seen a recurrence happen this quickly in a decade<\/strong>.<\/p>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"768\" height=\"1024\" src=\"https:\/\/cota.org\/cotafortimmy\/wp-content\/uploads\/sites\/6743\/2026\/05\/IMG_9239-768x1024.jpg\" alt=\"\" class=\"wp-image-95\" srcset=\"https:\/\/cota.org\/cotafortimmy\/wp-content\/uploads\/sites\/6743\/2026\/05\/IMG_9239-768x1024.jpg 768w, https:\/\/cota.org\/cotafortimmy\/wp-content\/uploads\/sites\/6743\/2026\/05\/IMG_9239-225x300.jpg 225w, https:\/\/cota.org\/cotafortimmy\/wp-content\/uploads\/sites\/6743\/2026\/05\/IMG_9239.jpg 1112w\" sizes=\"auto, (max-width: 768px) 100vw, 768px\" \/><\/figure>\n\n\n\n<p>In the few hours when things looked good, Tim lost all of his edema. His face slimmed down and he was excited at how small his legs were. Despite being beyond exhausted and utterly annoyed by drains and tubes and IVs, he looked at me and said, \u201c<em>I haven\u2019t felt this great in two years<\/em>.\u201d<\/p>\n\n\n\n<p>So, the fact that the FSGS is back and has robbed him of that feeling and kind of put us back to square one\u2026 crushed doesn\u2019t even begin to cover how we feel.<\/p>\n\n\n\n<p>There\u2019s a treatment used in post-transplant recurrence called plasmapheresis that could work to reverse course and get the donor kidney into remission. It&#8217;s intense, and required him to undergo yet another procedure under anesthesia to have a vascular catheter put into his chest. <\/p>\n\n\n\n<p>Plasmapheresis involves removing plasma from Tim&#8217;s blood and replacing it with donor plasma and\/or albumin, in the hope that it&#8217;ll remove a factor in the plasma that makes his kidneys prone to spilling albumin and other critical factors. It&#8217;s intense, and each session takes about two hours from start to finish. He&#8217;s scheduled to have at least 7 treatments over the next couple of weeks.<\/p>\n\n\n\n<p>He\u2019s now had three treatments. <\/p>\n\n\n\n<p>Maybe, for once, Tim will fall into the percentage of cases where a treatment option works. Maybe he can catch a break. I\u2019ve never hoped for anything more.<\/p>\n\n\n\n<p>Regardless, it\u2019s more stress on this kiddo (who does NOT thrive in medical environments) and everyone supporting him. There\u2019s a good chance it\u2019ll add to the amount of time we\u2019re up in Pittsburgh.&nbsp;<\/p>\n\n\n\n<p>Funds are being raised for COTA for Team Timmy to assist with transplant-related expenses. If you can, a donation would be a great way to offer your support.<\/p>\n\n\n\n<p>Continued thanks to everyone who has reached out, donated, sent gifts, and kept us in your thoughts. <\/p>\n","protected":false},"excerpt":{"rendered":"<p>Jacob\u2019s donation and Tim\u2019s transplant went well initially. However, less than 48 hours in, it\u2019s clear that Tim\u2019s FSGS has recurred in the donor kidney. His surgeon said he hasn\u2019t seen a recurrence happen this quickly in a decade. In the few hours when things looked good, Tim lost all of his edema. His face [&hellip;]<\/p>\n","protected":false},"author":2525,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-94","post","type-post","status-publish","format-standard","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v26.6 (Yoast SEO v26.6) - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>A successful transplant and FSGS recurrence - COTA for Timmy<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/cota.org\/cotafortimmy\/2026\/05\/13\/a-successful-transplant-and-fsgs-recurrence\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"A successful transplant and FSGS recurrence\" \/>\n<meta property=\"og:description\" content=\"Jacob\u2019s donation and Tim\u2019s transplant went well initially. 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