Submitted by Mike on Fri, 09/21/2007 – 10:47pm.

I know everyone is waiting for an update on our “life after discharge”! Things here are slowly getting organized. Brandon is enjoying having Grandma around to play with! Mike and I are enjoying the extra pair of hands!! We spend almost the whole day trying to get Brandon to drink. This has proven to be one of the most difficult tasks. We have been for labs several times. Brandon goes again in the morning. So far Brandons kidney function is good. We are still concerned with his blood count. We have to keep track of everything Brandon eats or drinks in a log book. This way we can tell the Doctors exactly how much Brandon is getting. The Doctors are still not happy with Brandons liquid volume.

I am still not feeling very good. I have spent the past few days in bed. The Doctors told me I am probably looking at a minimum of another 4 weeks of pain and swelling!( THE JOYS OF MOTHERHOOD!!!) I have only been able to help with Brandon a little each day. My mom has been to the store and has made dinner every night! If not for her the dishes would be stacked up onto the floor, we would have no clean clothes and would probably be starving!!

Mike is still very tired. He spends most of the day thinking up new ways to get Brandon to take a sip from his cup and making up Brandons medications. He has yet to see even one football game on t.v.!

Brandon still won’t take his medications. We are still having to hold him down and force them in. He has several scars on his belly but refuses to look at them. He screams if you lift his shirt or his stomach is exposed. The medications he’s on have caused him to have diarrhea. His little “hiney” is very red and almost blistered. We are trying to get Brandon back on a sleep schedule. Most medications are very time specific so we are having a hard time finding a window for him to even take a nap!

We are taking things one day at a time and can only hope tomorrow will be better than today!!

We added a few pictures to the photo album so be sure and take a look. THANKS FOR THE MESSAGES!!!!!!!!!!!!!
Love, Julie