Our Story
Our braveheart Nathan was born November 16, 2006. He was born with blue feet and hands, which was our first indication that something might be wrong with this health. He was diagnosed with aortic stenosis and started his heart journey on the day he was born. In December 2006, Nathan underwent his first open heart surgery to try and correct his heart murmur. That went well, but you could still tell...
Continue Reading »Updates
February Visit
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Journal Entry by Mary Ruhland — March 1, 2023 Last week Brian and Nathan got back from their three-day stint at the Mayo.It was a good visit... Continue Reading »
Visit Complete
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Journal Entry by Mary Ruhland — Thursday.Nathan and I got home late Tuesday night after a very busy and full two days in Rochester.We arrived Sunday afternoon to... Continue Reading »
Upcoming
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Monday. Hey gang - wow almost a month without an update! What a blessing that is - no new is good news Nathan has been rocking school and... Continue Reading »
The Joy of Water
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Journal Entry by Mary Ruhland — 2 hours ago Friday.Yesterday afternoon, Brian and Nathan got home after spending three days in Rochester for this round of appointments. Everything went... Continue Reading »
Business As Usual
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Journal Entry by Mary Ruhland — Sunday.We're home from Rochester as of Friday afternoon. Nathan and I are both exhausted but it was a great trip.On the way... Continue Reading »
We’re Off!
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Journal Entry by Mary Ruhland — 2 hours ago Wednesday. Nathan and I are off to Rochester today for three days. On the way down, we're going to... Continue Reading »
Proud!
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Journal Entry by Mary Ruhland — 8 hours ago Wednesday.Yesterday, Nathan needed a blood draw to check a few levels of things. Our Mayo team said we could... Continue Reading »
Blood and Drugs
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Journal Entry by Mary Ruhland — 10 hours ago Friday.Brian and Nathan went to Rochester on Tuesday and got home yesterday. It was a really, really good visit... Continue Reading »
Three Days
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Journal Entry by Mary Ruhland — July 21, 2022 Thursday. We're back home. What a whirlwind! (This is a long entry.) We arrived Monday night and checked into... Continue Reading »