Day 177 - The World's Most Expensive Medication

Today, Everett received his first dose of the world's most expensive medication. That's no exaggeration...it really is currently the world's most expensive medication!

To monitor his progress, we will need to visit the hospital every day for the next week. And to save his port from being poked again in the early morning, we tried to keep him accessed overnight. Unfortunately, even lazy Everett on steroids is still too wiggly, and we noticed blood under the dressing. Since clinic was already closed, we had to rush him to 5200 to de-access and clean up his port site.

Thankfully, Mommy arrived this evening and was able to comfort her little trooper!

 

 

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