Hip hip hooray for another stable clinic appointment! This is the first week in months that Everett did not receive an infusion of the World’s Most Expensive medication. While Ecluzimab works really well fixing the problem with Everett’s red blood cells, it also significantly lowers his immune system and puts him at increased risk for infection.

So, the team is hopeful as they begin slowly weaning and transitioning him to infusions every other week. The real test will be to see if next weeks lab results remain stable. Thank you for your continued prayers and support!