Weekly clinic visit at Sinai went OK. Unfortunately, we need to proceed significantly slower than expected while weaning off medications because the GVH rash, nausea/vomiting return with each reduction. However, we are encouraged to see minor improvements in his lab results!

In addition to the weekly checkup, Everett has 5-6 therapy sessions (1 Speech, 1 or 2 PT, and 3 OT) each week in our home. The schedule certainly keeps us busy, but his team is amazing and it’s been wonderful watching our little guy rapidly learning, growing and changing every day!

Thank you for your continued prayers and support!