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Our Story

 
My name is Hannah, at the age of 16 I was diagnosed with Juvenile Myasthenia Gravis (MG). As I got older, my MG became more severe. I was told that I was in respiratory failure. In October of 2014 I had a thymectomy; unfortunately, this surgery did not put me in remission as we had hoped it would.
 

Last summer after returning from my Make a Wish trip, I caught the common cold and nearly died. I was fine in the morning but come evening my parents were rushing me to the Emergency Room. By the time they got me on a gurney, I was in full respiratory arrest. I was sedated and intubated.

After a week on ventilator support, it was apparent that I was not going to recover quickly so I had surgery to place a tracheotomy and a G tube. I lost all the mobility I had gained through therapy and hard work. Before this respiratory crisis I was able to walk around on my own. Now I am dependent on a walker in the house and use a wheelchair for anything further.I require assistance j...

Updates

 

Richard M. Schulze Family Foundation will match gifts

The Richard M. Schulze Family Foundation will match gifts to COTA campaigns in Minnesota up to $10,000! These funds will assist Minnesota families with transplant-related expenses. All gifts to the COTA campaign in honor of Hannah Kiresuk will Continue Reading »

How you can get your church to help

Here is a news article you can include in your local church newsletter to help with Hannah's campaign. Continue Reading »

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