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With the cost of a transplant often exceeding $500,000, many transplant families are unable to shoulder the financial burden of such a procedure. The Children’s Organ Transplant Association (COTA) is a national charity dedicated to organizing and guiding communities in raising funds for transplant-related expenses.  Volunteers are raising funds for COTA in honor of transplant patients like young Helen Lynn, now seven years old.

Born in Alaska, Helen was diagnosed with Chronic Kidney Disease after her battle with E.coli/HUS when she was just two. After two years of being on and off dialysis Helen got her new kidney from her SUPER HERO from Healy, AK. In 2015, at Doernbecher Children's Hospital, in Portland, OR, her donor, Lori, got a little lighter, and Helen got a lot healthier! Helen is now almost three years post-transplant, stable and grateful for the daily gifts Lori’s kidney provides.

Comments

  • The COTA Staff

    We are happy to be working with you!

  • Dana S.

    It is my extreme pleasure to be the Community Coordinator for COTA for Helen L. It feels good to pay it forward!

  • Bob and Libby Mansfield Wynn

    Our thoughts and prayers are with you all, Helen is a beautiful, brave little girl

  • Hillary M. Marshall (Community Coordinator for COTA for Noah J)

    Dana & COTA for Helen L, Hoping your Princess Dash was a super successful event! Running and racing toward a healthy future for sweet Helen L. Hugs and prayers, Hillary

  • Rick Lofgren, COTA President

    Greetings from COTA! I want to congratulate the COTA for Helen L volunteer team for an outstanding job raising funds for the campaign in honor of Helen! When I set the campaign fundraising goals with all of our families, I try to do so knowing that some communities and volunteer teams have more developed resources and connections than others, and in fundraising these are critical to success. With this in mind, I usually suggest a goal to COTA patients that I believe is needed for any patient’s long-term expenses and transplant-related costs, and the goal generally reflects the next four to five years of out-of-pocket costs. For example, most of our patients will have $5,000 in annual co-payments, deductibles, and medications, as well as $7,500 or more of additional costs for clinic visits. This could mean $15,000 - $30,000 for these costs alone for any patient in two or three years after transplant. In this case, because your team and supporters have done such a great job, and with Helen’s ongoing care as she continues to recover from her transplant, I spoke with Lauren this past week and suggested that we raise the goal to better reflect what I believe is the true long-term expense that a patient will incur given age, insurance and other factors for someone going through his situation in the coming months and years. Because of this, I have raised the goal for the COTA for Helen L campaign group from $75,000 to $150,000 to reflect what I believe will be actual costs going forward. Please know there are many factors in this and that I bear the responsibility of justifying this to anyone who asks, and am happy to do this as I believe that it is the right thing to do. I want to convey that this is not a request for everyone to go out and do more than previously planned, but simply a reflection of realistic long-term costs. Thank you for all the work and support you have provided to this point, and please keep Helen, Lauren and the Lynn family in your prayers as Helen continues along her transplant journey!

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