Calamitous Thursday - Largely Averted
Well, he probably had about four mildish seizures today. We think it may be directly related to his lack of sleep over the last 2-3 nights. I am staying here tonight to see if we can break the trend of anxiety and lull him to sleep. I think he worries that he will knock his trach tube off, which does happen. Since he cannot speak he cannot tell the people who respond to the alarm that he has knocked off the trache. His nurse always responds but I do understand that feeling of helplessness. On another note, he told his psych doctors that he was scared of his boat sinking. I let them know that indeed he had once been on his Uncle Don's boat in Florida as it let in copious amounts of water and it had been in danger of sinking. The doctors told him "well that could have been very scary." I had to tell them that he had not been worried about himself, his father or his uncle for that matter, it was the boat that he had been worried about.
Still no real answer on the pneumothorax although at one point a fellow mentioned a word which I then stupidly googled iin relation to lung transplant. Pretty dire and since it was Thursday I had a little panic and texted the big gun, Dr. Eghtasady. Fortunately the attending allayed my fears to say that they still really did not know what was causing it. Dr. Eghtesady texted me saying he believes it is a bleb - yes a real medical term, something like a blister or bubble on a cell.