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With the cost of a transplant often exceeding $500,000, many transplant families are unable to shoulder the financial burden of such a procedure.  The Children’s Organ Transplant Association (COTA) is a national charity dedicated to organizing and guiding communities in raising funds for transplant-related expenses. Volunteers are raising funds for COTA in honor of transplant patients like local baby, Jase Snevely. 

Jase was diagnosed at one year old. He is the son of Michael and Jamie (Boswell) Snevely. Jase was diagnosed October 9 th 2015 with stage 4 high risk Neuroblastoma that has metastasized to his bones and his skull. It was taking up over 70% of his abdominal cavity compressing his diaphragm making it difficult for him to breathe. We believe the doctors have caught his cancer barely in the nick of time to save Jase's life. The doctors at Lurie Children’s Hospital in Chicago, Illinois, have recommended two life-saving stem cell transplants with the probability of needing more in the future. Since these costs are so daunting, our community is working together to raise funds for COTA ( Children's Organ Transplant Association) in honor of Jase S. 

 

** Update ** Jase will be starting trial treatment in New York Very Soon!

THANK YOU TO EVERYONE FOR KEEPING JASE IN YOUR PRAYERS! 

Comments

  • Anonymous

    Praying for my lovely little grandson Jase - he has a long road to recovery. Jase has a team of doctors, nurses, and medical techs. We know he is great hands. Please be sure to click on all the links and read Jase's story. He is a tough guy and endures daily treatments but keeps a silly smile on his face. My thoughts and prayers go to my son Michael and his wife Jamie as the struggle through out this crisis. Stay strong and combine your love to build a tighter bond for your little ones.

  • Jamie

    Without the love and support and assistance of family we- the Snevely family could not make it though this tough time. Mo no words could ever describe the love, compassion, time, and care you have shown our kiddos:) we will forever be grateful to have you in our lives..

  • Rick Lofgren, COTA President

    Greetings from COTA! I want to congratulate the COTA for Jase S volunteer team for an outstanding job raising funds for the campaign in honor of Jase! When I set the campaign fundraising goals with all of our families, I try to do so knowing that some communities and volunteer teams have more developed resources and connections than others, and in fundraising these are critical to success. With this in mind, I usually suggest a goal to COTA patients that I believe is needed for any patient’s long-term expenses and transplant-related costs, and the goal generally reflects the next four to five years of out-of-pocket costs. For example, most of our patients will have $7,500 in annual co-payments, deductibles, and medications, as well as $5,000 or more of additional costs for clinic visits. This could mean $15,000 - $30,000 for these costs alone for any patient in two or three years after transplant. In this case, because your team and supporters have done such a great job, and with Jase’s ongoing care as he continues to recover from his second round of transplants, I spoke with Jamie this week and suggested that we raise the goal to better reflect what I believe is the true long-term expense that a patient will incur given age, insurance and other factors for someone going through his situation in the coming months and years. Because of this, I have raised the goal for the COTA for Jase S campaign group from $50,000 to $150,000 to reflect what I believe will be actual costs going forward. Please know there are many factors in this and that I bear the responsibility of justifying this to anyone who asks, and am happy to do this as I believe that it is the right thing to do. I want to convey that this is not a request for everyone to go out and do more than previously planned, but simply a reflection of realistic long-term costs. Thank you for all the work and support you have provided to this point, and please keep Jase and his family in your prayers as he continues along his transplant journey!

  • Phil Kocinski

    Jamie Sorry about Jase I will see what I can do to help out I always liked you in High School I talk to some people and will see what happens

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