It's been a while since I posted on the blog, having put my updates on the monthly report lately. So I figured a blog update is due.
Domination in the medical world is about the one way I can describe things of recent. I did a hospitalization in December/January. I then went back to the real world, followed up with my evaluation for transplant listing in Denver. Wow, what a process!! Three days of appointments and testing. We (Craig and I) met with the transplant coordinator, financial counselor, dietician, rehab counselor, doctor and social worker. They took many, many vials of blood; and did more tests than you think would be possible in such a short amount of time. But alas, we got it all done. They give you an hour by hour schedule to make sure of it!
I loved going to Denver, as it's been 2.5 years since I've been there, seen the mountains...and got to see some beloved family too. But I did have a hard time with the elevation. Wasn't sure how my lungs were going to do; quickly found out and I look forward to the day when I have new lungs that can handle it again.
Upon returning from Denver, I was sick again and went back in the hospital. I was very, very sick. My lung tests were at an all time low of 22%.
Now, I am finally off the IV antibiotics, back to the real world again. But I'm not gonna lie, folks; it's tough. My functions are at 28%. I think how I was just at 35% at Christmas time....today, I found myself daydreaming of the days when I was 49%, about six months before I started this campaign. I never, in hindsight, thought I would yearn for a mere 49%....or realize how good 49% felt!
And we wait to hear from Denver on the listing....they have had me go through a series of follow up tests, which I have been able to do here in Omaha. We are hoping those tests are done, and that a decision on listing will be upon us in the near future.
In the mean time, I continue to do things as normal as I can. But normal is different. Normal means I can't vacuum, or do half the laundry, or cat litter even. Ha! Who wishes they could do cat litter???
I am lucky to have Craig in my life, with all the physical and emotional support. I'm sure he wishes he could give up cat litter! :)
On some positive notes...I am working, and grateful to have a job I love so much; as I mentioned, Craig along my side....relatives and friends who remind me this tough road has a happy ending; very loving kitties in my lap who love me so much.... current medical state pretty much dictates right now, moment-to-moment, day-to-day. But with all these good things in my life, who could ask for anything more?
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And finally, thank you all for your support...ALL support...physical, mental, financial on the campaign, your love and care....all of it goes further than you know!