Waiting and Waiting

Porter continues to rest and receive his sedation medication.  He had an episode overnight and one this afternoon where his HR dropped into the low 60's and he turned a shade of blue.  Our docs are still waiting to hear from Texas but have been told that they are reviewing the information.  Our cardiologist feels being at 1A status again is the best option for Porter right now and is not sure the myomectomy would be beneficial. However, despite his set back, Porter is continuing to grow and when weighed today he weighed in at 5.58kg which is up from the 4.9 he was at.  He is continuing to tolerate the regular formula at 24ml/hr which is the most volume he's ever been able to tolerate.  His little arms and legs are good and squishy with soft baby fat skin.  

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