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Our Story

Want to find out if you're a bone marrow match for Alex?


In the United States?
Visit his Be the Match site for testing information or a kit by visiting http://join.BeTheMatch.org/loveforAlex

In the UK?
Visit http://www.anthonynolan.org to register

 

This is Alex...


Alex Sims was diagnosed with IPEX syndrome in 2016 – an extremely rare autoimmune disease that most doctors have never heard of – with fewer than 200 diagnosed cases. In addition to muscle, joint, skin and digestive problems, Alex developed Type I Diabetes at the age of 2 and has experienced countless hospitalizations due to viral infections.  

Alex is in the third grade. He loves reading and really enjoys being at school with his friends. At school, Alex gets to forget about his disease and just be a kid. When he grows up, he wants to be a super hero. Iron Man is his favorite because he has protective armor and nothing can hurt him.

Most IPEX kids die within the 1st or 2nd year...

Featured Post

What is IPEX?

What in the world is IPEX Syndrome?

That was our first question too! 


IPEX is a rare genetic auto-immune disorder. So rare that most doctors know little about it. Medically speaking; IPEX is caused by a mutation of the FOXP3 gene and remains genetically specific to boys. With so little inform...

Continue Reading »

Updates

 

Ballard Annex Oyster House Fundraiser for the Month of April

During the month of April, Executive Chef Jaymi Stahnke will feature “Superhero Oysters” on the menu. The proceeds from Superhero Oysters will be donated to COTA for Team Alex S. Continue Reading »

SEVERAL SWAB EVENTS COMING UP!

Register online at https://join.bethematch.org/loveforalex Continue Reading »

Thank you Tide Tables Restaurant, especially Bob and Gwen for your donation!

Each year, customers from all over America visit Tide Tables Restaurant in Cortez/Bradenton, Florida and post dollar bills with their name, state or slogan all over the restaurant walls. The quaint little dock-side, family friendly restaurant is Continue Reading »

MEDIA COVERAGE: Bradenton Herald publishes two articles about Alex and IPEX

The Bradenton Herald recently published two articles about Alex and IPEX. We are getting some great attention for Alex and IPEX! Check them out at the links below! Continue Reading »

MEDIA COVERAGE: Article on The Belleville News-Democrat

The Belleville News Democrat recently did a very nice interview with Brandon, Alex and Sherry, which includes a video. Check it out at the link below! Continue Reading »

FUNDRAISER: Lemonade stand in St. Peters MO

Please visit Alex's friends' lemonade stand on Saturday July 22nd, from 1-4PM. Please come and support the kids in their efforts to help their friend Alex! Continue Reading »

UPDATE: Pictures from Donor Awareness and Testing Event at Caddy's on the Point

Held Their 1st Annual July 4 Celebration and Allowed Us to Hold a “Donor Awareness and Testing Event” and a 50/50 drawing. We signed up 20 potential donors and raised $600 from 50/50 sales and donations. What an awesome Crowd! Continue Reading »

Media Coverage

December 2017: Sarasota Post: Continue Reading »

Centene Walk for Wishes 2017 sponsored by "Make a Wish"

On April 15, 2017, Alex and family attended the Centene Walk for Wishes 2017 at Forest Park sponsored by "Make A Wish" the largest event of its kind in the country. Proceeds from the event help fulfill the wishes of children battling Continue Reading »

Elvis Night Fundraiser

We would like to thank both VFW Post 10141, Bradenton FL and Post Auxiliary members and Bill Lindsey (Elvis) for a great night! Continue Reading »

What is IPEX?

IPEX is a rare genetic auto-immune disorder. So rare that most doctors know little about it. Medically speaking; IPEX is caused by a mutation of the FOXP3 gene and remains genetically specific to boys. With so little information out on this disease Continue Reading »

How You Can Help

If you could help make a miracle, would you? Continue Reading »