Want to find out if you're a bone marrow match for Alex?
In the United States?
Visit his Be the Match site for testing information or a kit by visiting http://join.BeTheMatch.org/loveforAlex
In the UK?
Visit http://www.anthonynolan.org to register
This is Alex...
Alex Sims was diagnosed with IPEX syndrome in 2016 – an extremely rare autoimmune disease that most doctors have never heard of – with fewer than 200 diagnosed cases. In addition to muscle, joint, skin and digestive problems, Alex developed Type I Diabetes at the age of 2 and has experienced countless hospitalizations due to viral infections.
Alex is in the third grade. He loves reading and really enjoys being at school with his friends. At school, Alex gets to forget about his disease and just be a kid. When he grows up, he wants to be a super hero. Iron Man is his favorite because he has protective armor and nothing can hurt him.
Most IPEX kids die within the 1st or 2nd year...