Our Story
Leo was born at 33 weeks gestation along with his twin brother Derek at Children’s Hospital Colorado (CHCO) after a prenatal scan revealed that he had an abnormally small left ventricle, mitral valve and aorta. Leo had two heart surgeries in his first 6 weeks of life, one to repair his aorta and one to open up his mitral valve in hopes that he could make it long enough for...
Continue Reading »Leo Robinson
Transplant Type: Heart
Transplant Status: Transplanted
Goal: $50,000.00
Raised: $20,976 of $50,000 goal
Raised by 106 contributors
Updates
Summer 2021 Update
Posted
Leo has had a somewhat eventful spring and summer. Beginning this past March, Leo had some concerning changes on his echocardiogram. Without a cause such as a virus,... Continue Reading »
Check-up Reports and Formula Change
Posted
Leo has had a big week of appointments! He had his check up in Denver and got a lot accomplished! First and foremost, he had a great... Continue Reading »
Surgeries 7&8: Pleurodesis/VAD Wound
Posted
Once Leo got his heart transplant, the heart itself did very well and acted like a typical transplanted heart. Since it had been sitting on ice on the... Continue Reading »
Heart Transplant Day! (Surgery #6)
Posted
The days following Leo's mechanical pleurodesis were terrifying and seemed hopeless at times. The lack of fluid leaking meant his body and lungs held onto it, as you... Continue Reading »
Surgery #5: Mechanical Pleurodesis
Posted
Being put on a Ventricular Assist Device (VAD) is a major surgery, especially for an incredibly sick baby. Recovery was intense the first few days, but Leo's vital... Continue Reading »
ECMO to VAD Part 3: Surgery Day
Posted
Walking into Leo's room the next morning was strange. My little baby boy, who I was reading his favorite book to just 24 hours earlier, was now completely... Continue Reading »
ECMO to VAD Part 2
Posted
The day after finding out that Leo needed a heart transplant was long. Long because I knew my child's heart was barely functioning on its own. It was... Continue Reading »
Surgery #4: ECMO to VAD Part 1
Posted
Before beginning to tell the story of Leo going from ECMO to VAD, let's rewind 5 days to March 28th. We had been discharged after his second admission... Continue Reading »
2nd Surgery: Mitral Valve Repair
Posted
The wait between Leo's respiratory distress event and his second surgery was one of the longest weeks of my life (little did I know what lay ahead). Our... Continue Reading »