Our Story
To view Lindsey's video, click here. Lindsey Cooper was born seemingly healthy, but at 9 months old, her health began to sharply decline. She was unable to grow and failed to thrive. After hundreds of tests, Lindsey was finally diagnosed with ornithine transcarbamylase deficiency (OTC), a rare X-linked genetic disorder, at 14 months. OTC patients are unable to produce an enzyme in the liver leading to a buildup of ammonia,...
Continue Reading »Updates
Chimes of Freedom (by Bob Dylan)
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It's been 10 days since Lindsey's muscle repair surgery and despite a few bumps in the road, she is healing remarkably well. She was in the hospital for... Continue Reading »
Closing Time (Semisonic)
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We are back in Pittsburgh for Lindsey's long-awaited follow up surgery. When she had her liver transplant, the surgeons left her abdominal muscles open to allow room for... Continue Reading »
One year later
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Next Year (Macklemore)
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Next Year (by Macklemore) A year ago today we awoke to a 2:30am phone call from Children's Hospital of Pittsburgh. Eight hours later we were on a plane,... Continue Reading »
Skyscraper (by Demi Lovato)
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We are extremely excited to announce that Lindsey has made it 6 months post-transplant without any major issues or complications! This marks another milestone because six months marks... Continue Reading »
That’s What I Call Home (by Blake Shelton)
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Hello friends! It's been a minute... time has gotten away from us since we returned home to Michigan! We are all VERY happy and relieved to be home... Continue Reading »
Coming Home (by Dirty Monkey)
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Ladies and gentlemen, this is not an April Fools joke. Lindsey is really coming home! She had her last clinic appointment today, and the next time she will... Continue Reading »
Almost There (Anika Noni Rose in “The Princess and the Frog” Movie)
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We are nearing the end of our time in Pittsburgh, hopefully! Our medical team is aiming to discharge Lindsey to home (Michigan) in the first week of April. ... Continue Reading »
Lady (by Brett Young)
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Happy 8 weeks post-transplant! This is a major milestone for all of us. Mike is currently in Pittsburgh with Lindsey, and she's acting normal, but we have noticed... Continue Reading »