A heart for Jaxon is what we need. It’s so surreal to have our family on the receiving side of donation. Years ago, we were on the donating...

ICU doctor came in with an update. They removed the central line in his groin due to an infection there. He said that while yes there is a...

Yesterday the dialysis machine was stopped to see if his kidneys can function properly on their own. He had one liter of output overnight. They will be putting...

Prayers are working.... his kidney numbers are looking good, and they are starting Lasix to get him peeing. At 4pm, they are shutting off the dialysis to see...

The nurses and respiratory therapists here not only are taking wonderful care of Jaxon but they also go out of their way to incorporate Jaxon’s likes which really...

Jaxon is still doing ok. They have started two new antibiotics as his white blood cell count continues to raise. He is answering yes or no questions and...

Lots to update on! They stopped TPN and increasing feeds through NG tube. They lowered ventilator and will continue to until he is off in the next few...

Last night was the first time since December 5th that I was away from Jaxon. Man was it hard emotionally. But it was good to get a full...

Jaxon’s surgery went very well. They placed an LVAD (left ventricle). This LVAD is implanted inside his chest. He will have a cord that comes out of his...

Well today brought more answers and more challenges ahead. Jaxon successfully had a heart catheter and with no issues! However, he has to have a LVAD and possibly...