We were warned there would be days like this. It’s been a tough 24 hours. A rushed dosage of meds last night ended up causing partial/temporary hearing loss in Ceara’s left ear. And an emotional fallout for both of us. Little sleep was had for me. I just felt overly anxious about everything last night. Which has honestly been the exception. And surprisingly for me as I compare myself to Chicken Little quite often. I feel like God has prepared me well for this challenge in our family. He, through answered prayers, keeps me calm and most things manageable on most days. I would say the same for Ceara. I’m so proud of how she deals with it all. 

This morning she started her day off feeling really tired which is unusual. Usually the fatigue gradually increases throughout the day. She relayed her symptoms at my urging to the transplant team. They decided that placing a PICC line and starting Milrenone was the way to go. Without going into too many details the procedure ended up being pretty rough. Then the medication began. And then she started having some unusual palpitations. The team was ON IT! The nurse happened to be in the room, the nurse practitioner saw it on the monitor and came in. Dr Morrison, who hadn’t been gone long from a bedside visit, came back after consulting with the ICU doctor. They decided it would be best that she be placed in ICU for the night. The lower chambers of her heart was the part giving her grief today. He felt they were more equipped to deal with an emergency here in ICU than on the 8th floor. I just want to brag on Dr M for a bit. He has done everything from transport her from clinic to the hospital, to friendly visits everyday- talking to us about anything but her health!, to consoling both of us, to trying his best to make sure we wouldn’t lose our beautiful room. Above and beyond that guy! We are blessed to have him in her corner. 

So the plan is that her new med will be increased tonight under even closer supervision and checked again in the morning after they get her up and moving. Until then our fingers are crossed that I don’t get the call in the middle of the night to move all of our belongings out of 8007. 

*On a separate note, we saw a tiny little quilt covered gurney come to take one of our little neighbors to the funeral home. We are grieving for a little ‘friend’ and their family that we didn’t even know. I may be bummed about our little setback but there’s a family here tonight that is facing the absolute worst. These doctors, nurses, and other professionals that deal with this all on a daily basis are angels on this earth. 

♥?Ashley