For a week or two shy of the 18 month mark post transplant everything went pretty well. There was a period of time of dealing with medication side effects,...

Happy November! Here we are starting another month in the hospital. Super frustrating! I'll start with the less good news and end with the happy stuff. Pulling that...

It’s been a few days since my last post. We’ve moved back up on the 8th floor (Our home away from home of a month). There’s been a...

Good Morning! I can’t think of a word that would be fitting to use for how we feel. Thankful, grateful, appreciative. They all just seem so lacking. We...

I’ve quoted that to myself several times today. Today was hard. It got a lot better then got hard again. This morning she was pitiful. The worst and...

I've got a feeling we are off to a much better day today! She rested the best last night since transplant. They've taken the Nitric and Oxygen canula...

Good things still happening amid the exhaustion! What a high we were all on on my last post. So many emotions and feelings. It’s so hard to describe....

We’ve been in here for a couple of hours. I can’t stop marveling over the beauty of seeing this new heart beating in her chest. Her color is...

Sorry I’ve not updated. It’s been pretty boring. Until today!! This morning we got THE call. There’s a match. A great one!  So I’ll try my best to...

We were warned there would be days like this. It’s been a tough 24 hours. A rushed dosage of meds last night ended up causing partial/temporary hearing loss...