The best news and answer to prayer this week was Cohen’s ophthalmology appointment showed his pressure behind his eyes caused by high intracranial pressure had normalized. So thankful! This was our first hurdle to pass in order to be re-listed for transplant, next is another lumbar puncture on 9/9 to confirm. So our prayer request remains the same in the waiting.
-No high intracranial pressure seen on his upcoming LP to get re-listed!
-Smooth LP without complications or post-procedure headaches
-That he stays clear of sickness and recovers from his cough/cold to avoid pushing LP back any further
-Continued prayer for right liver at the right time for him
We also made a tough decision this week, which was recommended by his transplant team, to begin homeschooling instead of him attending in person. This is to get him healthy & keep him healthy for the LP and then for transplant. We are still trying to process this switch and hopefully begin to adjust to a new normal for a short time of getting work from school. Cohen has a lot of mixed feelings about this. He knows that this is being done because transplant is coming which leads to some very normal and expected fears. Usually when this pops up we spend our time talking through our hopes of life after transplant, being done with oxygen, running with friends, playing sports again. We choose trust again that God is at work, and we start over the next day laying down the worries.
Thank you again for all the prayers!
Our daughter-in-law homeschooled her kids right up to college. They did very well in college. She was involved in some great programs. The homeschooling helped prepare them for college so well – to work independently and think for themselves. I know he can’t be involved physically with some of the programs, but pray the Lord will give him what he needs to compensate for lessened interaction with others for right now. We pray not only for his physical needs but emotional – and for yours, too.
LOVE THE HAIRCUT C🙌🏻✌🏻