This time 2 years ago, we were huddled around a hospital bed at Children's Hospital praying over our sweet baby boy who would under go a life saving...

Now 25 months big and strong!! Rocking big boy undies on! Day 4 of no diapers (except at night)! Big boy has been doing awesome with potty training. Just  a...

He enjoyed a weekend at our family camp over Father's Day weekend. Fishing, campfires and helping Pap drive on the dirt road were a few of his favorite things. ...

Conrad is growing and really healthy! He's been riding his bike and playing outside working on his sun tan. He truely enjoyes juice boxes, gram crackers and pizza!...

Conrad is now an active healthy 20 months old boy. He just completed his abdominal muscle closure surgery a couple weeks ago and is thriving as a toddler...

Conrad is just 3 weeks shy of being 20 months old. He loves playing with cars, playing in the kitchen and chasing our cat, Blu. He loves to...

Liver numbers are high again. The doctors are recommending a biopsy for Thursday morning. It will be out patient unless they find anything more serious than mild or...

I'm 16 months old! My last few sets of lab results have been good. We are still working on figuring out the right type, dosage and timing around...

Conrad is doing great! He had a happy Halloween dressed as a lion and enjoyed trick or treating in the neighborhood. He likes to help his mom when...

Another day... Another blood draw. All part of the journey. After a stick in each arm, we still didn't get all that they needed. It just doesn't happen...