Great news! We were moved to inpatient therapy on Tuesday last week. The week started off with a full day of assessments from PT, OT, SPEECH, her teacher,...

Why are we fundraising with Children’s Organ Transplant Association (COTA) in honor of Cyla? The Children’s Organ Transplant Association (COTA) helps U.S. transplant families avoid financial ruin. Transplant...

Over the weekend Cyla had her wound vac placed in the open wound on her abdomen. This is a crazy contraption that sits inside the wound and has...

Thank you from the bottom of our hearts to everyone who came out to row max meters for COTA in honor of Cyla! With your help we rowed...

Last couple days have been relatively calm <3 As you know they opened up the one incision and had to tend to the hematoma that had formed. Since...

Tough couple of days for my girl. Cyla had just been moved to a step down unit from PICU, and within hours of being there, she had to...

 Update from Mom, Chrystal, from days leading up to transplant and some post op. Trying to find the time to update everyone who is supporting and praying for...