Elijah is finally out of the hospital and settling in with his family at the Ronald McDonald House! He's absolutely thrilled to be outside, soaking in the fresh...

Update: Elijah's pressures in his heart looked good. That being said he's been on milrinone for 7 months. The team wants to try taking him off the milrinone...

Elijah recently experienced a stroke, which the medical team believes may have occurred during his cath procedure. They are closely monitoring him to understand the full extent of...

Hey guys, Elijah has developed a fever and we don't know why. The highest it's been is 102.2. The doctors are finally checking for a central line infection...

If you want to discuss milestones, many of us work and live for years to reach the ones we consider important. For Elijah, each day, each month, each...

For those of us who are old enough to remember growing up during the Mercury and Apollo days in the '60s, and early '70s, meeting an astronaut was...

Elijah is still soldiering on. Got a bit of a trim. He looks a bit tired but so neat and clean. Two years with his condition is a...

Mothers are certainly a precious resource but it can be very hard to maintain that vital connection when medical necessity meets up with that desire for connection. Mom...

The process as Elijah waits for his new heart can be hard, frustrating and frightening. It is in this backdrop that every positive detail can be so very...

Jessica is Elijah’s big cousin. She ran the biggest run of her life today in honor of Elijah, and her own family. Please feel free to send this...